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Yes, it does goes on to say: (4:20 approx) "But there's more to it than simple deconditioning and achieving VO2 max at a lower heart rate." They then go on to describe what happens during a 'crash' when ME patients VO2 Max rate drops even lower. The "more to it" seems to be in relation to PEM...

This is the same institution in Vancouver that pushes the CSS model of disease talked about in this thread. https://www.s4me.info/threads/hypothetical-questions-what-if-psychobabblers.2441/ It's the same people who will be presenting their model at the Montreal conference next month. (4:03)...

Mmm - Could be I suppose but I drink over 60 oz of water a day. It's been like this for years. Wonder if it has something to do with blood volume.

Thanks for weighing in @Trish and @MeSci I've been laying flat all morning except for one brief period of being upright to get a cup of coffee. When I wrote this a couple of hours ago with my arms at rest, my veins were collapsed, actually inverted, and I was very much feeling drained. I had...

Does anyone notice that the veins in their arms collapse for periods of time throughout the day? There's also periods when the veins are absolutely huge. I've been intending to take notice of exactly when this happens but so far I haven't managed to, although I suspect eating may have something...

Hi @Alvin We realize there's a world apart from Facebook. :) The group itself is meeting on Facebook but May events and actions for Canadians to participate in will be announced here as well.

Sign up at: https://www.facebook.com/groups/361879520959490/

MILLIONSMISSINGCANADA Quick Easy Action for All Canadians! Ask our Heath Officials to adopt the recommendations for ME, FM and ES/MCS right away! A report containing excellent recommendations that will benefit all sufferers with these illnesses was released 6 months ago by the Ontario...

Hmmm... Thanks @Sunshine3

Not that we've seen or we wouldn't be promoting it.

Contact Your Ontario MPP Right Away! Flood Their Offices With Your Calls! In preparation for an upcoming event at Queens Park on March 20th, Ontario residents with ME, FM and ES/MCS are being asked to contact their MPPs in person, by phone or email. Urge your MPP to press the Honourable Dr...

I've heard the video from last night is uploaded and can be viewed. Does anyone have a link?

The conference preliminary agenda is out. https://tinyurl.com/ybdkm5hv

That's great @ahimsa! I know it's not an easy thing to do and it takes a toll on many who try. For some it's not even possible. However, every single person who pulls off the effort brings us all one step closer to our goals. Thanks for going out - and thanks for sharing here so others might...

Update November 13th, 2017 Overall since the beginning of this campaign, we've had many people step forward and meet with their MPs. This week, starting today, the MPs are back in their ridings. This will be the last opportunity to meet with MPs before the Christmas break. We're encouraging as...

This campaign was launched at the end of August and is the second in a series of major campaigns targeting our Canadian officials. The first major campaign in the series was the 'Open Letter to the Minister of Health of Canada' and can be found in both English and French. It was designed to...

My apologies @Alvin for coming across snarky. There are so many issues we could have focused on in this petition. We consulted with many others during the process and took numerous factors and approaches into consideration. We very much wanted the petition to include specific requests that...

@Alvin Ampligen has been approved multiple times via the Special Access Programme for ME, so yes, Health Canada has approved Ampligen. We are not aware of Rituximab being approved for ME via SAP. In our meetings with Hemispherx, they provided data that showed Ampligen has 50% efficacy for...

Thanks so much @Inara!

A couple of kind souls on a FB group posted some tweets for me which I've reposted on our FB site but am having difficulty linking to here for some reason. It's encouraging to see so many MPs talk about about the impact the film had on them.