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  1. Skycloud

    'Unrest' - Amazon Prime member deal until 17th December

    Just seen this: Amazon Prime are offering reduced rental of Unrest in the UK until 17th of December as a prime member deal at £1.99...
  2. Skycloud

    Guest Editorial: A Radical Care Pathway for ME/CFS

    Well I hadn't read it before so thanks for posting it just for me! eta or maybe I have, but I don't remember :cautious:
  3. Skycloud

    Sickness behaviour – useful concept or psycho-humbug?

    But random mutation is supposed to have a far more profound affect on evolution. What you are talking about perpetuates an existing genetic line/s, with adaptation within the potential of those genes. And learned behaviour/knowledge passed on generationally occurs under those conditions. The...
  4. Skycloud

    Phase III Rituximab Trial - News

    SW has his ducks in a row for a happy future. I wouldn't be surprised if from his perspective he can afford to loosen his grip on PACE; his position in the establishment is secure, his image well protected. I expect his income is too. He's not always right though, is he.
  5. Skycloud

    IiME conference 2018 starting to fill in agenda: J Corbyn (to be confirmed)

    I see Mady Hornig has signed the card :) But not my family, lazy sods :mad:
  6. Skycloud

    Discussion of patient self reported adverse effects of Rituximab

    @Jenny TipsforME Do you think it would be useful for Mendus to have a thread of its own?
  7. Skycloud

    Forward ME Group Minutes – 17th October 2017

    @NelliePledge I think that's it too. I'm waiting for those minutes with interest. Good idea. I'd like to see the charities working together more. Why are there so many of them?!!
  8. Skycloud

    Sickness behaviour – useful concept or psycho-humbug?

    I'm sorry you get that recurring pain. Her injury was to her ligaments, possibly she did have some pain recurring pain(?). But the limp would magically disappear completely as soon as we turned 180 degrees and she knew we were going home. No limp all the way back. It was very striking. I...
  9. Skycloud

    Sickness behaviour – useful concept or psycho-humbug?

    Re: animals - I had a dog once that, after recovery from a leg injury, would fake limping if she wanted to abandon a walk and go home. This behaviour often coincided with foul weather. Once turned for for home the limp would disappear and she would eagerly trot with a spring in her step. Smart...
  10. Skycloud

    Tymes Trust - No reported harassment of staff at Bristol University

    I understand, Barry. I think I'm just not up to wishful thinking today :)
  11. Skycloud

    Tymes Trust - No reported harassment of staff at Bristol University

    This idea is wishful thinking because EC wouldn't agree to take part in such a thing just as she doesn't attend the Invest in Me conferences. eta or any of the rest of them
  12. Skycloud

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    It would be a serious thing for a legal department to do this. I could be wrong but I don't think a legal practitioner would put their own professional standing at risk for EC.
  13. Skycloud

    Using PCs versus laptops when you're mostly in or on your bed

    I'm fundamentally flawed and the drinks and snacks know it
  14. Skycloud

    Using PCs versus laptops when you're mostly in or on your bed

    If I had one of those @MarcNotMark I'd be fighting my family to keep them off it
  15. Skycloud

    Phase III Rituximab Trial - News

    I'm feeling pretty deflated now, especially when I think back to the look of shock on my then GP's face when I told him about the phase 2 trial. Thanks @Scarecrow Good to know.
  16. Skycloud

    Esther Crawley

    Sorry SlySaint, I was writing my post in response to the discussion as it had developed when you posted. My take away from the article was that she noticed a real need; that children with ME need help and lack appropriate specialist services. This is true. She may have tripped over something...
  17. Skycloud

    Tymes Trust - No reported harassment of staff at Bristol University

    The British establishment in it's many forms doesn't do apologies. If they do, they squeeze out something ambiguous and inadequate, preferably after anyone involved is dead.
  18. Skycloud

    Esther Crawley

    Maybe my perception is a skewed but... My concern is the danger of playing the man and not the ball. We want to have and keep possession of the ball, and we don't want to be benched. (Pwme have been benched for a decades.) The judgement of that can be a fine line and is based on perception...
  19. Skycloud

    Esther Crawley

    I agree with you @Esther12. I'd add that speculation of this kind doesn't get us anywhere. It can be tempting, but it's a waste of energy, in my opinion, and plays into their narrative of martyrdom.
  20. Skycloud

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    At least the coast is strategic positioning should he need to leave the country suddenly and discretely in a small pleasure boat. :emoji_rowboat:
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