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  1. Hell..hath..no..fury...

    The missing link: why disabled people can’t afford to #DeleteFacebook

    During my early bedridden years, mobile phones didn’t even exist. The only info on ME was two tatty library books and they were crap :confused: Being isolated back then, really meant complete isolation. My version of social media was letter writing to people all over the world. Waiting to see...
  2. Hell..hath..no..fury...

    Care cuts

    Our future is too frightening to think about. Every time i feel sorry for myself in the present, the only thing i have to cheer myself up is, these are probably ‘the good times’ in relation to what’s coming :(
  3. Hell..hath..no..fury...

    Why I want to lie down in public - BBC

    Ha i was there just a few weeks ago! but had to miss going inside, didn’t have the strength to walk around it, and also get back to accomodation, its bloody massive :ill:
  4. Hell..hath..no..fury...

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    God that man’s such a creep. Can’t bare looking at any photo’s of him especially when i don’t have my sick bucket within reach
  5. Hell..hath..no..fury...

    A long forgotton weird one...

    I've just found this article online that talks about brain oscillations viewing the world through successive snapshots, this sounds similar to what i was talking about, only maybe my brain is sticking or freezing and i'm physically seeing the snapshot...
  6. Hell..hath..no..fury...

    A long forgotton weird one...

    I've gotta write this one down before i forget and while i'm still in the middle of dying. This is one of those long forgotten weird ones that i haven't noticed for 20 years since the early days of 40 plus symptoms a day. I'm currently in freefall since russia, fighting a fever, glands...
  7. Hell..hath..no..fury...

    "Paralysis " from neck down?

    @Pibee this is a great way to describe it, ie the body not consciously connected to the brain. I've suffered with this for 20 years, non stop for first 2 years. The conscious connection would also explain how we could temporarily get movement back and then just as quickly lose it again after a...
  8. Hell..hath..no..fury...

    Masking the symptoms

    I've spent the last few years thinking i wasn't doing too bad on the allergy front completely forgetting that the sleeping tablets i've been using for years are also anti-histamines. I went to russia last week for my birthday and had to leave those tablets behind... By the time i got off the...
  9. Hell..hath..no..fury...

    Wiped out by carbohydrates

    Excluding carbs from diet helps me a lot. I currently eat a maximum of 20g of carbs a day so barely any. Its great not having hunger pangs like carbs gave me constantly. (Its Usually only mental hunger pangs for the carb addiction anyway) I lost 10lbs in weight in a couple of months from...
  10. Hell..hath..no..fury...

    Unrest now on Netflix

    I'm still young-ish but I'm a social media refusenik too :bag: I'll stay this way until the day i'm eventually forced :grumpy:
  11. Hell..hath..no..fury...

    Unrest now on Netflix

    Its fantastic that its on netflix at all. It never even occured to me that it could end up on there. Its done so well :trophy@ :)
  12. Hell..hath..no..fury...

    Simon Wessely Research & Related Quotes

    Not to worry, a quick dose of CBT will fix that in no time ;) easy peasy.
  13. Hell..hath..no..fury...

    Simon Wessely Research & Related Quotes

    When i first started reading them i thought it was a joke/interpretation thing. Then as i scrolled down I realised I changed my opinion to just a joke ;) Amazing work @Valentijn
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