Search results

Merged thread What is being studied? RECOVER-VITAL is studying whether PAXLOVID (a combination of nirmatrelvir and ritonavir), an antiviral drug used to treat mild-to-moderate COVID infections, can be used to treat Long COVID. PAXLOVID works to stop the virus that causes COVID-19 from...

Very festive! Enjoy!

https://www.nytimes.com/2024/05/07/opinion/medical-ethics-dissent.html?unlocked_article_code=1.qE0.p6-j.STaHvx7pZIgJ&smid=url-share

Thank you for making this video.

Thank you!

Do they have any information available about who is running the organization?

@RaviHVJ, is there a way to find out which senators have signed on already?

Very sweet. Thanks for sharing.

yes, please!

Edited based on @Dakota15's comment. When people like Dr. Koroshetz refer to ME/CFS or Long COVID, or any similar, poorly researched condition as a "mystery", it implies, at least to me, that the person believes that the problem is *just* a hard medical problem to solve when in reality the lack...

Nice article. Thanks for sharing!

Here is what I submitted: Thank you for your efforts to address the Long COVID crisis. The proposed Long COVID Moonshot legislation has the potential to impact millions of people living with this devastating illness. Millions of additional patients could be helped by including in the...

Just came to s4me to post this link and it's already here, yay!

Nice job, @Dakota15 !

You might research POLST (Physician Orders for Life Sustaining Treatment) which is filled out by a healthcare professional. Some quotes from the links below: From the info below, it sounds like a person with a POLST would need to carry it with them in case of scenarios that happen outside a...

What kind of facial lotions and/or facial sunscreen do folks use? I have tried a number that haven't worked (bothered me and provoked various symptoms). My not-so-good solution has been to skip sunscreen and just try to wear a hat when outside, but I'd prefer to protect my skin with some SPF.

If these posters are so convinced their views are correct, why not use their real names? Plus, it would save everyone some heartache - we could avoid making appointments with them, and they wouldn't have to treat us.

Gaffney's tiresome refrain doubting that long Covid could result from a SARS-CoV-2 infection always comes back to his favorite (and seemingly only) evidence, studies that show patients with and without SARS-CoV-2 antibodies reported the same level of symptoms. Therefore, he says, the most...

Nice video, thanks for sharing. I liked the way they incorporated both the patient experience and the research being done by the German and Norwegians. Prusty seemed awfully optimistic that some breakthrough could be found in a short amount of time despite such limited government investment...

I ask the very same question, @Perrier . If accounts like these do not spur these folks to action, what will? How much more clearly can this community communicate our suffering and pleas for help?