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Darren Jones has been helpful in the past( Bristol North West) and Alex Chalk (Cheltenham) has been supportive. But if you'd like I'll check with the MEAction database to see which other advocates we have to call on elsewhere in the country?

I'm just about to climb the wooden hill, so will read the thread tomorrow, but happy to support finding an MP to ask a question. I can approach mine (minimal chance of success TBH), or find another in the South West through the MEAction Facebook group I help admin. We have a number of supportive...

I've never declared it for car/motorbike or home insurance as it's not a factor for me. However, I sourced a specific policy for a holiday we were supposed to be taking before this relapse. I was very glad I did as the relapse hit a week before we were supposed to leave! I had no problems with...

Thank you, some interesting takes there that hadn't occurred to me. You might be right on the last one @Trish, I'll check with the broker tomorrow.

Ended up a bit rambling and ranty so moving my question to the top! Does anyone have any recommendations for life insurance cover with companies that understand that ME isn't a mental health disorder? ××××××××××× My wife and I are remortgaging to fund some work on the house. We both work part...

Quoting myself just to add that I had the results of my antibody test this evening and have very high levels. Very pleased as it was low after one shot. Took about 3wks to get back to my normal baseline after vaccine, so on balance, for me, it was worthwhile.

My only suggestion is to be patient. I was really ill for the first 36hrs after my 2nd Moderna (no real side effects after the first), had a fever, a lot of muscle aches and was very weak. Most of it went away after 36hrs, although over a week later I'm definitely not back to my normal...

I don't know the history of the research team, but if I ignore that then I thought it was a well written article. A friend sent me a link to it, and I have to confess I put off reading it thinking it'd misrepresent the patients, but it came across well. If the history of the researchers isn't...

I agree, transparency with these sorts of things feels like the best route. I definitely didn't have saline last night, I feel like I've been hit by a truck!

I had Moderna at the start of May, due the follow up jab next week. Had the expected sore arm for a few days and was more drained than normal but didn't have an exacerbation of ME symptoms. One thing I found interesting is that I had a quantative antibody count done 4wks after the first shot...

Well that's great to hear!

I find it hard to interpret that in a positive way, given the amount of noise the BPS lot have been making over the last few weeks.

That's very reassuring. Thank you.

Not quite answering the question you asked, so apologies if you've already ruled these out, I only skimmed the previous posts. We bought a robot vacuum a couple of years ago, and it's one of the best purchases we've made. In my view it doesn't wholly replace a conventional, which ever type you...

Going to answer my own question, in case it's of use to anyone else (not due to being slightly bonkers and sitting in the corner talking to myself :wtf:). I emailed the owner, who said he's had to take it off line after the service provider migrated to new servers and (despite being told...

I've been using Flaredown for nearly two years, but haven't been able to log symptoms for a few days, or access the account through their webpage. Are there any other Flaredown users on here and are you having the same issues?

Firstly, thanks for the advocacy you do, particularly when you have to trade it against your health. Secondly, this comment resonates greatly with me. It's bad enough not being able to be the parent I wanted to be, but the thought of one of them taking ill with ME and there being no effective...

I'm now pretty convinced that you're right on this. Have heard from someone else who ended up much worse after following the advice from that clinic, and they were moderate/severe initially. They were very scathing of the way they were 'treated'.

Action for ME have been publicising some of their events recently.