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The historical bad blood between the states was before my time. ME Australia has worked closely with Emerge and personally I’ve volunteered for them for years. Heidi asked ME Australia to formally join forces with Emerge (our members preferred to stay independent). It was ME Australia who...

Occupational therapist Dr Julie Hughes, who has published two papers on CFS, is supervising students at the Australian Catholic University doing research into people with ME and CFS, conducting interviews on the impact. Chelsea Bartlett is the student doing the research and Rachel Makepeace...

@Ravn Emerge were given responsibility more than 7 years ago to update Australia’s CFS guidelines ago, according to Australian authorities, and they’ve let Australians down badly here...

Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating short-term and long-term effects of paediatric ME and CFS (Jason et al definition) on brain structure and function...

Yes, you are right, we are waiting for CEO’s response. So therefore no, the report has not led to outcomes, they were driven by other factors, ie Health Minister’s decision. CEO had not even seen report when those decisions made.

Disappointing the NHMRC dragging their feet to finally release this report and yet still no outcomes from the CEO. NHMRC told ME Australia that the CEO’s response to the report was expected ‘middle of the year’...

I’ve just been reading about them and am pleased, they’ll be able to contribute a great deal and move forward on issues so I’ll be keeping a close eye. Australia often follows UK policy so what happens there matters here.

@Trish, yes! Thousands of hours reading and thousands spent at Iherb... That reminds me to do a follow up interview with Australian psychiatrists who were studying mitochondrial supplements.

Good idea @Alvin! I have something similar to the second one but the top one looks good too. Then I’ll still be able to see even when the dog lies across me.

Warnings that the Australian CFS guidelines were 'biased, out-of-touch and potentially harmful' were ignored. Thousands are receiving harmful medical treatment and denied disability support due to failure to update them back in 2012. Back in the 90s, the government saw a need for guidelines...

I’m profiling Dr Josev in Meet The Scientists soon and wrote a summary of this study: https://meaustralia.net/2019/06/24/teenagers-with-me-and-cfs-use-same-energy-to-think/ Reading the ME Research UK summary was interesting (and interesting that Australia’s scientists seek fund from so far away...

$2.2m late last year from Stafford Fox, I think @Trish is referring to: https://app.secure.griffith.edu.au/news/2018/11/27/generous-2m-donation-to-bolster-efforts-of-griffith-cfs-researchers/ We won’t find out until at least mid 2020 about the grants, according to NHMRC...

Merged thread Prof Marshall-Gradisnik, Prof Staines, Dr Cabanas and the NCNED Team at Griffith University provided an update on their ion channel findings and drug trials: https://meaustralia.net/2019/06/20/research-update-from-the-national-centre-for-neuroimmunology-and-emerging-diseases/

Health Minister announced funding earlier this year, then next, the advisory committee’s report on its way to the Research Council CEO. Now, here’s when funds will be distributed: https://meaustralia.net/2019/05/19/research-council-expects-to-fund-me-and-cfs-projects-in-2020/ We are seeing one...

Well, the official title of the Dubbo study is “‘A prospective study of the psychiatric & medical characteristics of post-infective fatigue & chronic fatigue syndrome”... https://meaustralia.net/2018/05/06/mistakes-of-the-past-the-pathogensis-of-melancholia-and-other-wasted-money/

That never fails to horrify me.

Up to you to decide, but I don’t think it’s worth signing. I wish there was, but can’t think of a simple action that international people can do to help. Others might have ideas and I’ll come back if I think of any. Thanks for asking, appreciate the support!

Thanks for the right link @Sly Saint

Unfortunately some misleading info from Emerge today said Labor matched Liberals’ election commitments. In fact their letter said they’ll wait for NHMRC advice, following advisory committee report, before deciding. No election commitment from either Liberals or Labor. The Budget already...

I’ve summarised the review here https://meaustralia.net/2019/05/16/government-advisor-calls-for-more-biopsychosocial-research-into-me-cfs/ *edited with correct link Bit behind the times as John Whiting was going to do it but he must be too busy. Hope he’s ok. Looking through this thread...