Search results

The Australian Greens party announced their policy on ME and CFS, it’s great news that they have a policy in the lead up to the upcoming federal election. We hope the two major parties do the same. Former senator Scott Ludlam started this work, continued by Senator Steele-John. The policy...

Took me a while but here’s ME Australia’s response. https://meaustralia.net/2019/03/25/draft-report-wrongly-claims-99-recover-from-chronic-fatigue-syndrome-and-me/ I was surprised there wasn’t more of an outcry about the draft report claiming that 99% of people with ‘post-viral fatigue...

Hello, A few people expressed interest in reading ME Australia’s response to the draft report from the NHMRC Advisory Committee, I finally put it online: https://meaustralia.net/2019/03/25/draft-report-wrongly-claims-99-recover-from-chronic-fatigue-syndrome-and-me/

Thanks Michiel.

I’ve summarised the full paper here if you are interested ‘Children with chronic fatigue syndrome often wait more than a year for diagnosis’ https://meaustralia.net/2019/03/13/children-with-chronic-fatigue-syndrome-often-wait-more-than-a-year-for-diagnosis/

I’ve written a summary, interested to know what you think @Ravn @Michiel Tack I thought he was Australian and just lived in Belgium (amongst other places), have I been wrong? https://meaustralia.net/2019/03/12/endotoxin-intolerance-theory-may-explain-me/

Merged thread Dr Christopher Armstrong is an Australian scientist researching Myalgic Encephalomyelitis (ME). He moved to California late last year to take up a position at the Open Medicine Foundation. Previously Dr Armstrong worked on biochemistry and molecular biology in the Bio21 Molecular...

ME Australia will be publishing our feedback soon so I’ll provide a link when it’s up.

This will help people providing feedback to the NHMRC: It is definitely worth being familiar with the 2002 Australian chronic fatigue syndrome guidelines and their flaws, which dictate Australian government decisions on applications for the disability support pension, workers’ compensation...

Hi, I asked Prof Don Staines about his background, stigma to the name ‘chronic fatigue syndrome’ in Australia and how far away are treatments and a test that GPs can use. https://meaustralia.net/2019/01/24/meet-the-scientists-prof-don-staines/

Here’s what the NHMRC says the terms of reference are (noting that they distinguish ME and CFS): Terms of reference The NHMRC Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Advisory Committee will advise the Chief Executive Officer of NHMRC on the research and clinical guidance...

Here’s some history and background which may be of interest if you are making a submission https://meaustralia.net/2019/01/18/nhmrc-draft-me-and-cfs-report-asks-for-feedback/

Merged thread A study of Australian teenagers with chronic fatigue syndrome found CFS impacted their development of academic, cognitive and social skills. Students with CFS missed an average of 42% of classes over a term. Quite a few limitations with this study which the authors point out...

Released on the Friday before Christmas, the Australia’s National Health and Medical Research Advisory Commission’s draft report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome is open for comment until Monday 18 February...

Glad that writing this article prompted some action!

Yes, Wessley and White still very influential here. As well as being the recipient, Australia also exported psychiatrist Ian Hickie’s work, he’s one of the authors of the Fukuda CFS criteria and the Australian CFS guidelines.

I contacted patient organisations about their response: Emerge won’t be contacting Macquarie Uni but the Allergy and Environmental Sensitivity Support and Research Association Inc, the Australian National Register of Environmental Sensitivities both wrote and lodged complaints.

Hi Andy, Asking the ‘how far away’ and ‘when’ questions seemed to be the questions people want answered and I thought might reveal more concrete information. I’m always interested to know what else I could be asking and welcome feedback!

Australia’s Health Minister, Greg Hunt, has met with us (ME Australia) twice about the urgent need for biomedical research funding and updated treatment guidelines. Minister Hunt had a second meeting with recently with ME Australia, this time along with Prof Paul Fisher, head of microbiology at...

I can’t even imagine how bad the earlier versions were. As soon as the 2002 Australian guidelines were released they were condemned by the Senate, by the old national ME/CFS Australia and the Alison Hunter Memorial Foundation. The strength of their statements shows how vehemently they protested...