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  1. Seven

    Michael Sharpe skewered by @JohntheJack on Twitter

    I am doing great on symptomatic treatment = sleep, OI, inmune mods, and anything I need!!! I have kept a job and a family! That is more than the CBT and GET people ahve been able to hold! If they step aside, the symptoms on Cfs are not that uncommon that cannot be treated until we get a cure or...
  2. Seven

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think we can run PACe and GET with the 2 day cpet as a primary outcome measure, it will debunk PACE and give us great data to understand PEM.
  3. Seven

    CDC responds to false SMC factsheet claim

    Is all about liability legally. They will never admit wrong. If they do, they can be sued for any person that was harmed by those recommendation. Removing it is the right step on the right direction. Best we can ever hope for.
  4. Seven

    ME Association quick survey: "if, and at what level, M.E. has affected your education"

    Jesus I had to google each term. Apparently is some Uk terms. How hard is high school, college....
  5. Seven

    A series of PACE funding FoI requests

    What can one do legally when there is a discrepancy?
  6. Seven

    Ideas For Marketing ME More Effectively...

    I am sure the first step is a campaign to doctors that this is not psychological, the best way is to distribute a very short video of blood under microscope of a normal cell on CFS serum. Then wide distribute on places general population and doctors have access (We demonstrated we can trend as...
  7. Seven

    Blog: Don't Call The Doctor!

    you know how those Doctors Summit in USA where they came up with great Dr Primer and Kid and Teen primer? Maybe they can produce an ER primer.
  8. Seven

    Association of T and NK cell phenotype with the diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Rivas et al, 2018

    Mine were both low Ts and NKs (number and activity) not sure knowing this has helped me at all, since I cannot raise them no matter what I do (prescription drugs and supplements).
  9. Seven

    Retraction Watch: A frustrated former editor asked a publishing group for help. He didn’t like what they said.

    Will not even make noise or even be another source of pressure for LANCET/?
  10. Seven

    Exercise Intolerance in Preload Failure Treated with Pyridostigmine (2018) Faria Urbina et al (mentions ME/CFS & POTS)

    FYI, NAtural alternative? Huperzine A. Have not done much research but might try this.
  11. Seven

    Retraction Watch: A frustrated former editor asked a publishing group for help. He didn’t like what they said.

    Committee on Publication Ethics (COPE) = So can we send a complain here as of why the LANCET have not retracted PACE paper?
  12. Seven

    David Tuller Trial By Error: My Visits with Alem Matthees

    When I read, this all I could picture was Alem on his bed and Peter White on that picture with the princess, like side by side picture. Is the perfect picture illustration of the fracked up situation.
  13. Seven

    Chronic fatigue syndrome and idiopathic intracranial hypertension: Different manifestations of the same disorder of intracranial, 2017, Higgins et al

    I think yet again this is a sub group, I also believe some of us have another cause for the leak. I got my pressure meassure and it was ok. But I could swear I have leaks. I get this bump, pressure like and a few days later I feel some liquid spilled. Burns like hell, kind of like head acid...
  14. Seven

    How LGBTQ+ People Are Successfully Fighting Against Conversion Therapy

    If you bring to judge your serum, put one of judges cells in your serum on a big tv and show the judge how his cells poops on your serum, would be a win I would say! :) 2) get a juror or anybody to perform a 2 day Cpet test ( healthy vs you) you could prove Cfs. 3) get a professional Cfs doctor...
  15. Seven

    Article and documentary about ME from Finland - Yle Arenan

    Question. If Dr Davis ( or assigned person) makes a 2min video and do healthy the cell on Cfs serum. And demonstrate this is a physical disease and publish it or present it to all the equivalents CDCs and NIH world wide (not sure what they are called). Couldn’t we demonstrate biological cause...
  16. Seven

    To Your Good Health: 'Chronic Fatigue Syndrome Has a New Name, Possibly a New Test' - Dr. Roach in Valley News (April 21,2018)

    I hope that video showing the cells of Cfs not doing well on salt vs healthy control gets publish soon so this garbage stops soon.
  17. Seven

    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018

    Everytime I think we move forward the psy are behind the scenes cooking something. Is crazy.
  18. Seven

    AFME decide Geneva is where their #millionsmissing contribution should be

    Well, we are at crossroads now, If ME plp don’t go and they are controlling whatever agenda they have, then nothing we can do afterwards. If we split, we loose impact hmmm
  19. Seven

    Government and Insurance companies - establishing the BPS model

    This is why it really calls my attention plp still think Simon W, EC, Peter White.... do what they do out of conviction of BPs model vs all about what it is= a scheme to keep Cfs psychological for denying benefits. A clear article and reference would be nice to be publish where we can refer back...
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