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Would someone, perhaps @JaimeS , please explain to me how the disease burden of $190 to $250 million reported above relates to the estimated prevalence range of 800,000 to 2.5 million patients in the US. At the higher prevalence number, that’s only $100 per patient. Shouldn’t it be higher? I...

The hidden ME too: 100,000 people in Illinois could suffer from debilitating disease https://www.chicagoreader.com/chicago/myalgic-encephalomyelitis-me-chicago-research/Content?oid=47619823 This article published on the Chicago Reader (US) website has an unfortunately unspecific and...

From my perspective, it could be a sneaky attempt to salvage the PACE study by making it seem like the Graded Exercise Therapy that was studied and that has been imposed on patients worldwide was actually “pacing”. By doing so, it invalidates many of the arguments raised by patients, advocates...

Thanks, @Dechi . I'm glad to hear I'm not the only one skeptical about this approach. @Milo That's what I've been wondering. I've been following Doctor Stein for many years, and have always considered her to be among the doctors who truly understand that ME is a biological, and not a...

Here's a brief description of the conference from one of the Canadian clinicians who attended and presented: http://eleanorsteinmd.ca/news/ I'd be very interested in hearing from any members who attended or viewed Doctor Stein's presentation on Neuroplasticity. I pulled up her Powerpoint...

@Wonko Although I'm very sorry that the above is your experience, you're not alone. I have felt worse, much worse, on awakening every single morning since onset almost 30 years ago. The television series Star Trek: The Next Generation ran during my early ME years. I recall an episode called...

Here's one of the better personal stories about life with ME that I've read recently: http://www.eveningecho.ie/opinion/ME-is-a-blight-on-my-life-but-my-art-helps-4f94dbce-18b7-4226-91a2-5ddc6664b5c7-ds "So, for now, I will leave it to my puppets to tell the story of M.E. The personal, and the...

The issue I always think about regarding adverse childhood events is this . . . Those whose lives have not been derailed by chronic illness are less likely to do much "soul searching" in an attempt to establish what may have contributed to their current health concerns.

Congratulations, @brf and @ScottTriGuy , for a job very well done. The message was accurate and "to the point", plus written and delivered with just the right emotional tone. The video is worth a watch, and listen. Thank you.

@Arnie Pye , I didn't read the article, but you're right about the Comments. I guess they're not surprising, considering the mandate of the website the article was published on -- Market Watch. This answers your question -- MW is a financial website.

If CIHR will be providing funding to one Canadian team to participate in the ME/CFS Collaborative Project, it seems vitally important that steps are taken to ensure that actual ME patients are studied. This is less likely to occur as long as those advocating for ME patients in Canada continue...

While "Googling", the following commentary showed up as a press release ( NewsReleaseWire.com ) and is timely, leading up to awareness day next month: https://www.expertclick.com/NewsRelease/Mercy-for-Millions-Myalgic-EncephalomyelitisChronic-Fatigue,2018156745.aspx A few excerpts: "If you've...

Based on my experience, I don't believe ME is "primarily" an environmental illness. However, exposure to environmental toxins (natural and man-made) played a role in my illness onset both as a pre-teen (from which I recovered) and as an adult. In the first instance, I became ill one month...

Hi @Alvin , I received two emails after both donations -- a Thank You, and an Order Confirmation. The Thank You included the information regarding Canadian charitable tax eligibility, and the Order Confirmation included a Tax Receipt (which I ignored the first time). This time I actually read...

For Canadian donors to @dave30th 's crowdfunding project , I just learned that the University of California, Berkeley, is recognized as a tax-exempt organization by Revenue Canada. This means our donations are eligible for the charitable donation tax credit -- not that it makes much of a...

I have been waiting for a "matching" opportunity to make a second donation -- together with a contribution from Mr. MsUnderstood. Done! Thanks, Erica Verillo. Congratulations, @dave30th , for reaching your goal. Also, many thanks to the generous Anonymous donor who pushed the total over...

@Squeezy I can't recommend any other psychiatrists who take this approach. But, it appears your question is aligned with a current research interest -- at least according to this article in a Canadian magazine...

@Dechi Congratulations on finding your new home! Let us know when everything is settled and we'll have a :party:. I wouldn't be concerned about your current home not being renovated. Many people prefer this -- not paying for renovations that aren't exactly of their choosing.

@Dechi Perhaps you already know the answer, based on the above, but here's what I think. For me, there are two disadvantages to the home you are considering -- the requirement for a chair lift, and the outdoor parking situation. Although I would consider installing a lift in a home I already...

@dave30th Yes, of course I will support your new crowdfunding campaign, with many thanks for your dogged efforts to debunk PACE and raise ME awareness in other parts of the world. Unfortunately, Canadians can only experience the excitement from a distance. News coverage about ME in Canada is...