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“The colleges don’t want to come out publicly and say NICE’s committee screwed up.” So they have made it public by divulging this to a journalist?

Weren't they brilliant?! @Liv aka Mrs Sowester a truly amazing performance, you sound like a choir of angels. I'm so glad I was able to be there with you today, you guys are awesome! :trophy@:inlove: :inlove: :trophy@

The song is incredible @Robert 1973 , you have done such an amazing job combining all the voices, it really is amazing and sounds like it was recorded with all the choir together. Hats off to you and a big hug from me. Well done! :hug: :trophy@:emoji_champagne_glass: Eta Well done to everyone...

Who are the healthies doing all the work Liv? I feel pretty useless not doing anything.

Will your choir sing it on ME awareness day @Liv aka Mrs Sowester ?

99%! Now at $74,541

Yes, he's baiting us for a reason, just not sure what that is yet. He might use it in his defence to try to show that he has tried to engage with patients (Never mind that he hasn't bothered for years before now). Of course he will either forget to mention he blocked everyone whose questions he...

So pleased to hear that Woolie, long may it continue to help, it must be wonderful to have a little more energy and a little less payback! I shall look forward to updates.

This charity has information for patients with ME going in to hospital https://www.thegracecharityforme.org/documents/ Hospital Booklet Information for hospital staff regarding treatment of patients with M.E. (Myalgic Encephalomyelitis). If anyone would like a hardcopy, let us know and...

No, I'm having problems too, volume is up to max and I'm still straining to hear with my ear next to my laptop.

A certain amount of improvement is to be expected by being removed from the home environment and having round the clock care, especially if you were still having to worry about ordering food, meal prep, whether you will have the energy to eat if you wash yourself etc. It sounds as if for the...

You're right, but it is still satisfying that fb continually tries to get my location and the year I was born out of me, so I'm one up on that score!

I use facebook, but was concerned right from the beginning and used a false name, I'm so glad I did now.

When will we ever be safe, FNDers sound even more sinister than BPS. Medical Advisory Board Dr Richard Brown Senior Lecturer in Clinical Psychology and Honorary Consultant Clinical Psychologist, University of Manchester Dr Alan Carson Consultant Neurologist and Honorary Reader, Western...

@Russell Fleming

Yes, Fester doesn't define depression in kids with ME any better than she defines ME itself.

Looks great to me Sasha :thumbup: ETA Many thanks :hug:

Thanks Sasha, that would be such a fantastic help. I manage to include the personalised stuff, it's just the whole daunting prospect of composing it from scratch.

I do wish those of us who struggle more cognitively could be assisted more with template letters for advocacy. I have the enthusiasm to be more proactive, but very often lack the brain power to put a decent sounding letter together to send to my MP. The last time I did it the payback was...