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We should ask all infectious disease doctors to see how many HIV patients cured themselves using psychological approaches?

I would love if doctors who contracted Covid and developed Long Covid could each write a letter to the editor in response. I think it would be meaningful to put these clowns where they belong.

Re: “It worked for me” What exactly did you take the product for? What worked? on what basis can you say it worked?i If a drug for thyroid ‘worked’ then would you say that it treated hypothyroidism and not ME? Does that mean that the next patient will have the same response? do you have a...

The bigger the megaphone, the greater the responsibility. Reporting successes for N=1 experiments sounds very much like promoting treatments that can be harmful for others and harmful for our community as a whole. It sounds a lot like promoting to me. You need to be aware that here we talk...

No sorry, that was a typo. The iPad screen keyboard sometimes switches from letters to numbers without warning

the problem with this is that provocation studies is not without risks. While I agree we need to shift away from the concept of ‘fatigue’ and it is not useful, I tend to think 5at metabolic pathways is where the answer may be, but I am not stuck on any particular pathway as the explainer to each...

Symptom clinics already exist.

Former RN here, drawing lots of blood from central line (venous blood) towards the end of my career. Blood has different colours, subtle but some is darker than others, some is lighter than other. Similar to urine color. There are variations, and it does not mean that there is anything ominous...

Well to be honest, they had to report the news and it's been fairly bad year for them in the stock market.. https://finance.yahoo.com/quote/TNXP/ It sounds to me like they are trying to keep hope alive by trying to turn around and use the drug for other purpose than pain- and it's the wrong...

(Reuters) - Tonix Pharmaceuticals Holding Corp said on Tuesday its experimental drug failed to meet the primary goal in a mid-stage study for management of widespread muscle pain and tenderness associated with long COVID-19. Shares of the company were down 12% in premarket trading. The...

Why???

Moved post It was done several years ago, pooled csf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3044169/ Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome Steven E. Schutzer,# 1 , * Thomas E. Angel,# 4 Tao Liu,# 4 Athena A...

Right, because why would he need apheresis after all, if he is all recovered?

This is really bad.

Oxaloacetate CFS is branded only for ME (and now long-Covid), and one bottle of it will set you back 500$usd and you will need a new bottle every 6 weeks. https://benagene.com/products/oxaloacetate-cfs#

I had not, but I did (the article, not the paper) and still stand by my comments.

I added to my post that Dr Kaufman will also be presenting at the conference. In my view it represents a conflict of interest, particularly if Kaufman or any authors are also selling the product.

Thing is, there is breast cancer associated with BRCA1 all around the world. Even in family history of breast cancer, testing for the gene variant for their offspring is not automatic or permitted unless you are diagnosed with breast cancer yourself. So I do not see in which way this info is...

I have reviewed the conference website and took an interest in the ‘sponsors’, one being oxaloacetate CFS, with their branding of ‘medical food for chronic fatigue syndrome’. Please discuss. Edit to add: the oxaloacetate ‘people’ are also presenting at the conference .

Sorry it’s a bit off-topic but this stands out to me. How many doctors out there refuse to diagnose their patients with cancer because it’s an ‘unhappy’ diagnosis?