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Dr. David Bell writes that in pediatric ME/CFS, "The cognitive symptoms from age 3 to age 12 are indistinguishable from attention deficit disorder, and this is another area that has never been adequately studied." https://www.omf.ngo/2016/06/25/mecfs-in-children-by-dr-david-s-bell-2/

Thank you Mary for all your hard work on this and other ME/CFS issues.

An existing WebMD article on ME/CFS titled "The Scoop on Chronic Fatigue Syndrome" had misquoted the IOM report. I set out to change that, and this week the effort paid off. The Scoop on Chronic Fatigue Syndrome...

When I was collaborating with Healthwise to remove GET and CBT from the Kaiser Permanente website, it took several months for the update to appear live. Live content updates could only occur during prescheduled rollouts, and these were spaced several months apart. On rollout, there were some...

https://browserleaks.com/ip Yeah probably a real IP. Doesn't appear to be a VPN or Tor exit node. Not sure why Cort didn't simply delete the posts instead of adding fuel to the fire. It's his forum though. Probably better discussed in the online privacy thread. Sorry for the off topic.

James Coyne tweets his opinion.

Thanks. I'll modify the title to try to clarify.

It astonishes me this was written in 2019. No mention of ME/CFS biomedical research papers, but Elle magazine is cited. So there's that. Chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivities, and chronic Lyme disease are all lumped together as "contested illnesses". It's All...

As we learn more about Montoya, I can't help but see parallels with nearby UC Berkeley astronomy professor Geoffrey Marcy just a few years ago. There are differences certainly (Marcy's victims were mostly female postdocs and students). In a culture of silence, some tenured professors have gotten...

San Francisco City Hall.

Got an email from GARD (NIH) this week. They agreed to remove the statement that, in most cases, symptoms of CFS lessen over time. The relevant bits of the email follow (bolding and spacing mine): https://rarediseases.info.nih.gov/diseases/7121/chronic-fatigue-syndrome

The KPAX002 ME/CFS study of Ritalin (methyphenidate) combined with a mitochondrial supplement formula was not found superior to placebo, despite the press release spinning the results as positive...

In the United States, the National Academy of Medicine, CDC, NIH and NY State Department of Health all refer to ME/CFS as a "disease".

Kaiser Permanente Northern California now allows doctors to give a ICD-10-CM G93.3 "Myalgic Encephalomyelitis" diagnosis. In the past, it's only been a ICD-10-CM R53.82 "Chronic fatigue, unspecified" diagnosis, regardless of diagnostic criteria or symptoms. This shows up on the kp.org website...

Can I shop with my rabbits? Shopping bag in one hand, rabbit in the other. It could be extra useful in the produce section.

@Medfeb

Always low expectations for Komaroff, who is editor for UpToDate's improved but still-awful CFS section. UpToDate still hasn't completely rejected PACE, and states GET and CBT are beneficial for some ME/CFS patients. 2 decades ago, Komaroff did a presentation for the Medical Board of California...

I'm finding the low definition stream more reliable than the HD stream. If you're having frequent dropouts in the video, try turning off HD.

That said, I do hope Kaiser Permanente hires an ME/CFS specialist, particularly to help care for severe and very severe patients, and to help diagnose pediatric ME/CFS. When Kaiser Northern California hired its first sleep specialist 16 or so years ago, testing and care for sleep apnea...

For better or worse, the CDC says the primary care physician can develop and implement a treatment plan. This isn't the end game. But it's a rejection of the GET/CBT deconditioning model and an affirmation that ME/CFS is a serious biomedical illness not a psychological disorder. That's huge...