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I think it might be this, https://listserv.nodak.edu/archives/co-cure.html

This. They seem to expect to be able to smother the inconvenient truth, and just skate right past it, as if we would just forget once they admit there might be a physiological element too.

Well if the BBC fails, CH5 has a version called "Can't pay? We'll take it away", same principle, bailiffs chasing unpaid court settlements. Spoilt for choice ;)

@Wonko, I'm not sure your GP has a choice. The only requirements to be able to make an advance directive are to be over 18 and competent: https://patient.info/doctor/advance-care-planning

Publishing psychologists will be particularly aware of this consequence of ego over truth - won't they? o_O

Very helpful @Marco, as he has a comment on that page in answer to a question:

PS @Valentijn, thought you'd particularly like this quote from the book, :rofl: ETA correction.

I pricked up my virtual ears at this paper, partly because I find systems stuff very interesting in general, and partly because the idea of dysregulation, whether immune, metabolic, endocrine/neurological and/or something else, being integral to ME as a potential prolonging factor of some sort...

@rgn007 hello and welcome. Off-topic, but trust the 007 refers to super skills as an RGN, and not to being licensed to kill :nailbiting:;)

I had what I assume is meant by unrefreshing sleep for several years. I woke up feeling exactly as bad as when I feel asleep, as if I had not slept at all. These days, thanks to meds etc, sleep is helpful in that a decent amount of good sleep will make me feel less ill than the night before...

As far as Ron Davis' work goes, he was asked about publishing in his "Bedside Chat with Ben". According to the transcript, his reasons are: Tl;dr: RD says that he a) finds peer review a little intimidating, and b) is not sufficiently confident in his results yet.

Yes, you would think so, food is fairly basic, but having spent over a month in hospital myself this year after an emergency admission, I can confirm that having ME may work against the patient. I was assessed by an OT who didn't think much of ME, and thought I was pretending to be ill. As a...

The fact that Jay Goldstein signposted calcium channel blockers years ago, and as a result I suspect many patients have tried them experimentally (see all the threads on PR and elsewhere for instance), suggests that this kind of drug will not be a panacea, or we'd have heard about it from...

Just to note that the related calcium channel blocker nimodipine is third on the list of useful meds compiled by Jay Goldstein. According to the British National Formulary, https://bnf.nice.org.uk/drug/nimodipine.html Note the bit about vascular tone - possibly ties in with the NO hypotheses?

Wouldn't that be nice!

Hmm, that's unfortunately true: the DWP have shown themselves willing to spend a fortune fighting claimants at tribunal in the name of saving money, so they'd probably make every potentially entitled claimant go through the courts.

@Adrian, yes, I agree that testing LP was never really feasible given that, apart from anything else, it demands patients stop 'doing' ME and blames the patient for negative thinking if they don't get better, and, even more perniciously, requires a signature at the start saying that the...

@Graham, yes, that may be it, you made me laugh, but I think it's really a failure of competence when it comes to execution. It's a shame, because she could really do some good were her research skills up to par.

Funnily enough, @Trish , your first para is more or less what Crawley said on that point. I couldn't help wishing her research skills matched her vision. She's got it conceptually - research, test, verify - but when it actually comes to the research, she seems to be out of her depth.

Yes, I rather thought that was the subtext too, especially about the funding.