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As in this further piece from Norway 'giving the patients a voice' discussed here from 2024? Thesis - Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian) | Science for ME Conversely, what perpetuates illness, especially, severe - over focussing on symptoms...

Why now? This quote from the Review paper abstract This is the Norwegian reference for that statement (long block of text broken up for ease of reading) The Social Media Experiences of Long-term Patients:... 2016

I'd be surprised if anyone's even recorded such evidence so far. I was treated with phototherapy for psoriasis at the same Hospital as the CFS/ME Management clinic I attended decades later, so it was in my medical notes and I pointed it out to them in 2011. It wasn't relevant as far as they...

In the genes? My mum didn't develop Psoriasis until she was 55, and then only mildly. I'd had it for over 15 years by that stage. My brother had exzema as a child. Causes | Background information | Eczema - atopic | CKS | NICE

I've added a link to some of the trials. A person I worked with had Crohn's and then diagnosed also with ME/CFS.

No I don't, I only became aware of GIRFT the other day from a thread on here. I looked through it but it seemed to me that it was more to do with physical interventions not psychological ones in terms of patient safety/harms in the context of the litigation bill it refers to. I could be wrong...

Well now, that got me thinking more about co-morbidities. I’ve had psoriasis for 50 years. I have plaque, scalp, nail, and crease psoriasis. In the acute phase I was treated with coal tar preparations, phototherapy, antihistamines, it was everywhere head to toe. Still have nail, elbows...

Added to this little gem from the BMJ in September 1991 (same year as Oxford criteria jrsocmed00127-0072.pdf February 1991.) Medically unexplained physical symptoms. | The BM explains the links in the NHS page above all the way to personality disorders and thence to derivation of liberty...

I suspect this will/is appearing in the ME/CFS final delivery plan is some format or other looking at the NHS website updates from around the same time last summer on Medically unexplained symptoms. https://www.nhs.uk/conditions/medically-unexplained-symptoms/ Updated 5 June 2024 Next review...

:) 'thought' - also idea, concept, belief, notion What is none of those things, is the fact that for the last 14 years patients with formerly known as CFS/ME now known as ME/CFS have been banned from blood donation. The other diagnoses in those lists provided in the article aren't. I fact...

The Helsinki Declaration 13 December 2024.

That's why I asked which version of the review was in place in 2011. NICE Guideline 2007 right up to what should have been a publication date of the revised Guideline publication date of 18 October 2021. NHS told to act to stop ME deaths. Channel 4 News. Cochrane is procured, in part, through...

Bearing in mind the fact that Cochrane re-dated the review within the 56 day response time to the Coroner's Regulation 28 Prevention of Future Deaths report dated 7 October 2024, is this the reason: Severe Chronic Fatigue Syndrome (CFS/ME): Recovery is Possible - Lucy Burley, Diane L Cox...

The Intertwined History of Malingering and Brain Injury: An Argument for Structural Competency in Traumatic Brain Injury | Journal of Law, Medicine & Ethics | Cambridge Core 19 October 2021

Stephen Morris (0000-0002-5828-3563) - ORCID [accessed 9 Jan 2025] Deciding to catch them younger?: Malingering and illness deception conference, Woodstock 2001

Me too.

Does anyone know if the results of the POMME Study have been published yet? CFS/ME | Centre for Academic Child Health | University of Bristol

Encephalitis Lethargica | Encephalitis International UK phone number.

From the couple of paragraphs I've read so far @Trish this looks spot on. I've been doing too much reading lately so don't have many words in me today, except to say the cummulative effect of pacing up cannot be under-stated, nor the inherent fluctuating nature of the illness which can, and is...

I remember when they first started looking at faecal transplants and my husband remarking that it would be typical of me to have an illness where this could end up being one of the treatments. :laugh: He passed away 10 years ago. I wonder how much research funding has gone to BPS research...