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The guy is doing a great job of spreading the word about ME/CFS.

Here is the story on YouTube: Gary Burgess - Talking ME/CFS on ITV News

Here is a video stream of the full debate adjusted with the correct time points. http://parliamentlive.tv/event/index/cf2fde9d-f327-4bf4-8e72-1fc6124b8998?in=11%3A00%3A54&out=11%3A30%3A10

Think of what Xofluza could do for people that are venerable to flu complications. I have always stayed hidden away during the flu season. I am afraid of the possible complications from getting a flu shot, and even more afraid of actually coming down with the flu. PwME likely stand the chance...

https://www.forbes.com/sites/brucelee/2018/02/24/japans-new-drug-one-pill-may-stop-the-flu-in-just-one-day/ Xofluza could become an essential drug if it is as effective as the study says. Xofluza will only be approved for use in Japan initially. Global rights have been acquired by Roche.

Let's hope for some early results, else we are in it for the long haul.

Well you gotta start somewhere, the NIH clearly does not accept anybody else's research on the subject.

What we have here are 50 shades of fatigue. And no, this would not make a good movie.

You have to wonder after all is said and done, whether there will be anything conclusive to report other than what we already know. Will they develop a hypothesis that leads in the direction of Dr. Montoya's work? Will there be a hypothesis that points to an entirely new theory? So much is...

Q&A: Avindra Nath, MD Leading NIH study of post-infection chronic fatigue syndrom https://www.medpagetoday.com/neurology/generalneurology/71257

When you have ME/CFS, you often don't have a clue about how much you are over eating. Heck, I can't remember what I ate yesterday, or even just a few hours ago. But when there is no food in the house, well that's a different problem.

If it isn't about just not being able to get out of bed, it is about not having money. In California, if you are on MediCal, you can now get so many more dental services than ever before and they are all absolutely free.

This video shows you how the mitochondria works.

I started the year by planning all manner of self improvement. So far so good. On Valentines day I have a date with my dentist... ...In his chair under a light so bright you gotta wear shades.

Yes, I think we can all relate. PwME kind of feel PWN'D. We are thrown for loops by our physical condition. So our best does not always measure up no matter how hard we try. To make matters worse sometimes friends/family/doctors don't believe we are sick, they just don't understand. We need...

Sometimes my legs feel real weak. If I were to crouch down I would not be able to get back up. It is very strange.

I am sure deficiencies in this mechanism explain a lot of my symptoms.

This is excellent work. The truth was hidden in the data all along as was suspected. The conductors of the PACE study blatantly misrepresented the data for their own ends. This is most unconscionable because of harm caused to the patients in the study and beyond. Even with all this effort...

I think this a great resource to help introduce doctors to your reality. If you can get them to take interest in your case. I have observed that doctors often ignore even their own forms. It is hard to get a treatment plan or diagnosis with complex symptoms because sometimes, 15 minutes is...

My Comments: There is so much variation in the way people are afflicted by ME/CFS. So it is difficult to create a definition that fits everyone. Too few criteria will exclude people from a diagnosis. Having too many criteria will make the definition too broad, increasing the possibility of...