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  1. Sly Saint

    Esther Crawley's contribution to #MEawarenessweek

    Given the recent response of ' the information is not available' to a recent question in Parliament, I doubt it.
  2. Sly Saint

    Patients with Chronic Fatigue Syndrome needed for new study - Keele University UK

    " Posted on 17 May 2018 Researchers at Keele University are looking for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME) to discuss a study which aims to give a better understanding of the support needs of people suffering with the condition. A meeting will be...
  3. Sly Saint

    Meet the Scientists: Fane Mensah interview

    " Date: May 17, 2018Author: ME news Australia 0 Comments by Sasha Nimmo ‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve...
  4. Sly Saint

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    I saw this post some time ago: Are People ME/CFS Now Being Diagnosed With FND Instead? rest of post here (from 2015) https://healthunlocked.com/fndhope/posts/131853256/are-people-me-cfs-now-being-diagnosed-with-fnd-instead
  5. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    It should be available: from the IAPT Manual: " In line with the implementation of The Five Year Forward View for Mental Health, evidence-based treatment will be extended to people with comorbid LTCs or MUS (See Section 11.2). The newly developed IAPT-LTC services will focus on people who have...
  6. Sly Saint

    Ideas For Marketing ME More Effectively...

    @JenB have you thought of doing something with the 'voices from the shadows' team? http://voicesfromtheshadowsfilm.co.uk/
  7. Sly Saint

    PACE and 'Wessely school' 'research' - is it Cargo Cult Science?

    MS is actually quoting Richard Feynman now! delusional or what.
  8. Sly Saint

    Michael Sharpe skewered by @JohntheJack on Twitter

    Michael Sharpe has retweeted this....... baffled (see this thread) https://www.s4me.info/threads/pace-and-wessely-school-research-is-it-cargo-cult-science.3187/
  9. Sly Saint

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    Article on the above: How much does idiopathic hypersomnia overlap with ME/CFS full article here: http://www.emoryhealthsciblog.com/how-much-does-idiopathic-hypersomnia-overlap-with-me-cfs/#more-15001
  10. Sly Saint

    News from Scandinavia

    aha eta: just thought AHA were Norwegian(?)
  11. Sly Saint

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Cabal? What Cabal?......ha, talk about nailing your colours to the mast of good old ship PACE
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