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  1. Sly Saint

    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    GUPTA PROGRAMME FOR ME, CFS, FIBROMYALGIA, MCS & GWS – (GUPTA AMYGDALA RETRAINING) shared their video. 1 hr · Are you an over-achiever? Have you ever wondered why? Society teaches us to honour left brain, patriarch type values about achievement, success and glory. We have become trained...
  2. Sly Saint

    While Wessely plays with the Mental Health Act, and Chalder, Sharpe and others do useless research , children are being locked away

    Shut away and threatened like animals: Families tell how their children with autism and learning disabilities were locked away in secret institutions for years after they asked for help Those with autism and learning disabilities have fallen into 'dismal ‘care’ Parents shocked after children...
  3. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    on the other hand, I have found that they generally don't seem to know what orthostatic intolerance is
  4. Sly Saint

    Backbench Business Committee for next Parliament debate

    I thought it was absolutely bloody marvellous :D got just about everything in, PACE, 60% NICE committee being PACE supporters, powerful people in medical establishment, GET being harmful, need to make sure this guideline is right. Only thing was issue of deadline? I would have thought that...
  5. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Jon Ashworth Shadow Secretary of State for Health To ask the Secretary of State for Health and Social Care, how much his Department has spent on research into myalgic encephalomyelitis/chronic fatigue syndrome over the past five financial years. Tweet Share Hansard source (Citation: HC Deb...
  6. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    According to the current NICE guidelines re setting up the 2007 version: "The World Health Organization (WHO) classifies CFS/ME as a neurological illness (G93.3), and some members of the Guideline Development Group (GDG) felt that, until research further identifies its aetiology and...
  7. Sly Saint

    Mike's EU Marathons

  8. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    "NICE has explicitly accepted that they are accountable now for any damage to patients caused from the recommendations for CBT and GET for treating ME." "If rumours are true that people such as such as Professor Malcolm Hooper ( a scientist with long experience of ME) have been rejected as...
  9. Sly Saint

    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

    here: https://www.clahrc-oxford.nihr.ac.uk/team/michael-sharpe eta: came up when i was searching for something about MS; have highlighted a couple more on the list.
  10. Sly Saint

    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders: Results of an Estimate-Talk-Estimate Delphi Expert Study May 2018 van der Feltz-Cornelis CM., Elfeddali I., Werneke U., Malt UF., Bergh OVD., Schaefert R., Kop WJ., Lobo A., Sharpe...
  11. Sly Saint

    BBC Wales are planning a story on ME

    Unrest in the Senedd with MESiG https://businessnewswales.com/unrest-in-the-senedd-with-mesig/
  12. Sly Saint

    Graded exercise therapy for ME/CFS is not effective and unsafe. Re-analysis of a Cochrane review (2018) Health Psychology / Vink

    I don't think he sees it that way: http://www.simonwessely.com/index.php/cfs-personal-story/
  13. Sly Saint

    Horses for courses: choosing an evidence-based psychological therapy for your patient, 2018, David McCormack, Trudie Chalder

    there is mention of that in the video mentioned here: https://www.s4me.info/threads/medical-magic-by-elizabeth-moncrieff.5789/#post-104857
  14. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    can someone who has his email address send him a link to this thread eta: or someone on twitter
  15. Sly Saint

    Updates from the UK ME/CFS Biobank / CureME team

    also donated to MERUK
  16. Sly Saint

    Horses for courses: choosing an evidence-based psychological therapy for your patient, 2018, David McCormack, Trudie Chalder

    Don't have access to the full article: BJPsych Advances: Volume 24, Issue 6 November 2018 , pp. 402-411 Horses for courses: choosing an evidence-based psychological therapy for your patient "There are many different approaches to choose from and many have not been subjected to rigorous...
  17. Sly Saint

    Research Associate (FITNET-NHS Trial)

    Not sure if this is for the same job or yet another one for FITNET-NHS (or maybe the first one is leaving? as this one starts in December 2018): https://www.timeshighereducation.com/unijobs/listing/112535/research-associate-fitnet-nhs-trial/
  18. Sly Saint

    BBC Wales are planning a story on ME

    Another (?) story from Wales (in welsh so used Google translate): " ME: "Her life just has stopped" Natalie Price, the love of Jonathan Vaughan, has been suffering from ME ( Myalgic Encephalomyelitis ) for four years. This is a condition that causes extreme fatigue, and prevents the person...
  19. Sly Saint

    News from Scandinavia

    In Memoriam: Arvid Carlsson—Pioneering Researcher and Nobel Laureate "was instrumental in developing biological psychiatry in Denmark" "as late as 30 June 2018, the day after he died, a paper was published in Acta Neuropsychiatrica on which he was the senior author: “A randomised controlled...
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