GUPTA PROGRAMME FOR ME, CFS, FIBROMYALGIA, MCS & GWS – (GUPTA AMYGDALA RETRAINING) shared their video.
1 hr ·
Are you an over-achiever? Have you ever wondered why? Society teaches us to honour left brain, patriarch type values about achievement, success and glory. We have become trained...
Shut away and threatened like animals: Families tell how their children with autism and learning disabilities were locked away in secret institutions for years after they asked for help
Those with autism and learning disabilities have fallen into 'dismal ‘care’
Parents shocked after children...
I thought it was absolutely bloody marvellous :D
got just about everything in, PACE, 60% NICE committee being PACE supporters, powerful people in medical establishment, GET being harmful, need to make sure this guideline is right.
Only thing was issue of deadline? I would have thought that...
Jon Ashworth Shadow Secretary of State for Health
To ask the Secretary of State for Health and Social Care, how much his Department has spent on research into myalgic encephalomyelitis/chronic fatigue syndrome over the past five financial years.
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Hansard source (Citation: HC Deb...
According to the current NICE guidelines re setting up the 2007 version:
"The World Health Organization (WHO) classifies CFS/ME as a neurological illness (G93.3), and some members of the Guideline Development Group (GDG) felt that, until research further identifies its aetiology and...
"NICE has explicitly accepted that they are accountable now for any damage to patients caused from the recommendations for CBT and GET for treating ME."
"If rumours are true that people such as such as Professor Malcolm Hooper ( a scientist with long experience of ME) have been rejected as...
here:
https://www.clahrc-oxford.nihr.ac.uk/team/michael-sharpe
eta: came up when i was searching for something about MS; have highlighted a couple more on the list.
A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders: Results of an Estimate-Talk-Estimate Delphi Expert Study
May 2018
van der Feltz-Cornelis CM., Elfeddali I., Werneke U., Malt UF., Bergh OVD., Schaefert R., Kop WJ., Lobo A., Sharpe...
Don't have access to the full article:
BJPsych Advances:
Volume 24, Issue 6
November 2018 , pp. 402-411
Horses for courses: choosing an evidence-based psychological therapy for your patient
"There are many different approaches to choose from and many have not been subjected to rigorous...
Not sure if this is for the same job or yet another one for FITNET-NHS (or maybe the first one is leaving? as this one starts in December 2018):
https://www.timeshighereducation.com/unijobs/listing/112535/research-associate-fitnet-nhs-trial/
Another (?) story from Wales (in welsh so used Google translate):
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ME: "Her life just has stopped"
Natalie Price, the love of Jonathan Vaughan, has been suffering from ME ( Myalgic Encephalomyelitis ) for four years. This is a condition that causes extreme fatigue, and prevents the person...
In Memoriam: Arvid Carlsson—Pioneering Researcher and Nobel Laureate
"was instrumental in developing biological psychiatry in Denmark"
"as late as 30 June 2018, the day after he died, a paper was published in Acta Neuropsychiatrica on which he was the senior author: “A randomised controlled...
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