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I have not read it yet but the title is certainly meaningful. I'll get to it but wanted to post it. https://www.nytimes.com/2018/09/10/upshot/its-hard-for-doctors-to-unlearn-things-thats-costly-for-all-of-us.html

Sorry i didn't explain well, i meant that like the Fluge/Mella paper talking about pyruvate dehydrogenase inhibition in ME PBC also causes inhibition in pyruvate dehydrogenase. It may even be worth everyone with ME/CFS being tested for it just in case thats what they have (mine was negative). I...

If ME/CFS is a single disease my personal opinion is that its not as much complex as it is misunderstood. Once we have a disease mechanism we will be able to target it. Now if its several diseases we will have to identify and name the others. Vitamin K2 is an area that should see a great deal...

I am quite familiar with Vitamin K2, it does nothing for this disease in my experience. That said i have not run any clinical trials with lots of patients but its easily available in most countries and non prescription. Frankly it should be in the drinking water instead of fluoride for its bone...

Can they give you a quiet bed and know what to do if you need more? And i know exactly what you mean about :cry:

I'm so sorry to hear about this :( Hopefully both of you will be ok :hug: Are they able and willing to accommodate your condition?

I don't disagree All roads lead to Rome, If it were "replicated" which would became a fiasco it would put huge public pressure on this issue. The Lancet does not care about facts or reality otherwise it would already be gone. Whether its because the leader has an irrational belief in CBT/GET...

Thats the thing a debate on whether or not to reproduce fraud would be a fiasco. Also that would stimulate great "revelations" and the methods used and the biases and broken protocols would be argued greatly. This benefits us, mainstream scientists arguing en masse whether or not to commit fraud...

I was actually referencing him indirectly in my earlier reply, he was willing to show the harm being done without giving rationalization for further crackdown. Thats how he won, not a bloody uprising but by changing public opinion by showing his side would never back down but was being harmed...

But its fraud thats on the books that harms us, so how do we move on? I'm not saying replication is the only way to get it retracted but if it will work where other things have failed that would be great. If other things will work such as parliament hearing, a lawsuit, public shaming or any...

I agree yet facts have not got PACE withdrawn. If we need to go nuclear then we should do so. And i would submit that in order to be properly replicated the source of funding should be replicated as well :emoji_imp: Its an attempt to prevent the culture from fighting misogyny, to justify...

Isn't that the point, it is research fraud so attempting then failing to replicate the results which shows the original result is flawed is why there is a replication crisis. That said i would be very happy to simply have it retracted without a replication attempt (redirect the replication cost...

This is only the latest in many threads telling them the same thing

They don't care about rights until the court rules against them. In another thread we had talked about a charter lawsuit for equitable research funding, which i don't think would win because its a fuzzy logic argument from a court point of view. But a creative interpretation may be in order, but...

Indeed and when harm is proven they don't want to accept it +1 Who is supporting them?

They are still playing both sides so thats probably where the energy is actually going, maintaining the cognitive dissonance.

Anyone else notice @Action for M.E. stopped replying...

Aware is good but will they retest it (with honest testing and no biasing the results and pressuring patients to report improvement). And with the original criteria instead of the fake revised one. Even better if they use CCC or ICC instead of Oxford.

Premium content for subscribers :( Who is deciding what to replicate, can we submit PACE for replication testing?

No surprise. We mean nothing to them.