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I really don't think it's helpful calling it Long Covid after only 4 weeks. I thought most studies used 12 weeks.

Over exertion causing insomnia is well know to pwME as 'tired but wired'. For me it often a sign PEM is about to strike.

It's a pretty good and accurate article. I'm not surprised the Cochrane comment about their withdrawal policy omits to mention that they can withdraw reviews on the ground of harm. Good to see our petition quoted.

We have seen on forum discussions that some pwME find arms above the head activities unexpectedly exhausting. I notice it particularly when putting clothes on and off that have to go over the head. Replacing an overhead light bulb is really problematic.

The article does say there have been pauses to some NIH activities when some other administrations came in, but this is much more drastic.

As I read this abstract I was anticipating a report on follow up with the patients after surgery. Nothing. Surely with that number of patients treated with such major surgery they should include a careful study and report of outcomes.

Trouble is, they are descriptive categories not measurements. And the order they are placed in is arbitrary. So the pattern seen by joining the dots is also arbitrary. Change the order the descriptive categories are placed in and what looked like an elephant turns into a snake, metaphorically...

I can understand that clinicians who by the nature of the job have to deal with people suffering and in distress every day sometimes themselves need support, and need to be aware of and take care of their own mental health. I can see that learning to practice self compassion might appeal to some...

If they are using completely inappropriate questionnaires or the equivalent approach to interviewing the parents, it's no wonder they diagnose such a high rate of somatisation.

Posts with the US announcement of withdrawal from the WHO have been copied to: International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

Apologies for setting off a misleading discussion. The suggestion is Science Unravelled, not ME/CFS unravelled. I still think it's a problem though.

Only dizziness for me when badly crashed. Usually accompanied by nausea with or without vomiting. My usual OI is different.

The only one I can opt for is ME/CFS In Depth, which I like. Problem with ME/CFS Science - not distinctive enough, won't stand out from the crowd, and could be taken to imply more than you can be expected to supply. Sounds too comprehensive Problem with ME/CFS Unravelled - The word has...

Flu, Covid, Norovirus and RSV (respiratory syncitial virus) So called quaddemic currently filling UK hospitals to overflowing.

And there was I assuming from the title that this would be about compassion towards sick people. But no, it's about the clinicians needing compassion towards themselves for having to deal with us.

People with ME/CFS have been plagued by so called ethical use of completely inappropriate questionnaires for decades. It seems all it takes to 'validate' a questionnaire is to dream up some questions, get some people to fill them in, run the data through some stats packages and publish them. No...

I don't really get why the NHS needs e learning modules. Why not tell clinicians dealing with pwME to read the NICE guidelines? I guess I should read the whole thing before I condemn it. There are some good bits. At least it does make it clear we shouldn't be told to exercise and it's not a...

Just glancing through some of the treatment section Symptom management Sleep hygiene and CBT for sleep - no evidence and can be harmful for pwME Cognitive rehab - no evidence OI is confused with POTS. I'm no expert, but surely a blanket recommendation of increased salt for OI could be harmful...

I think it's unlikely a biochemist would normally be expected to study and comment on the details of the part of a joint study that is so far outside their field. Though this can be a learning experience about which sort of team to work with in future, and what questions to ask and seek advice...

Excellent idea.