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It's newsbeat radio 1 on about 12:50

The newsbeat program on this 12:45 wasn't so hot. One case study on there suggested that there's hope if you really want to get better and it doesn't last for ever etc. And there was talk of getting people up and about and used to being mobile again ( sounds so easy) with GET and Michael Sharpe...

My thoughts and I just want to say it's great seeing severe ME cases getting tv attention which I think is the greatest gift of this documentary. To me it was good to see severe ME stories covered well and very sensitively and movingly, well done to all those filmed. It should certainly...

I think BBC are capable of producing establishment defending stuff on their own.

Not by calling them leading. It just allows them to sound authoritative when theyre not.

In uk I'm lost as to if it's been promoted. I think I've found the right Facebook page now for it but have hardly seen it mentioned let alone promoted on the MEA & AFME pages I mainly frequent. There's not been much discussion on here either. I can't see discussion on Facebook just the odd post...

I've never seen anything by Chalder treating the illness as largely biological or acknowledging any biological underpinnings addressing fears and beliefs as CBT for CFS does is psychological treatment. She doesn't understand why patients don't like her trials- I'm sure tuller has written to...

I personally don't see why Jen breas film is the window for opportunity,it's just an awareness film, the need was there years and was being expressed by patients years. For me Jen breas film and #MM movement is just exerting a pressure and scrutiny which is making it harder for the...

This seems an example of how the MRC " ring fenced funding not what we normally do' which we have been fobbed off with since 2012 is just an excuse for CFS . They're now calling for proposals for MH treatment research with £5m up for grabs...

So who's fault is it, who should have done more and hasn't not making more of that failure to step up been part of the problem

North Bristol trust are BACME. That's the problem with AFME, at every turn PACE collaboration, choice of medical advisor alistair miller previous, sister of ayme close with Crawley, working with hazel o dowd, this ... they're teaming up with the establishment, BPS lot. They re in Geneva so get...

One comfort is those poor shell shocked traumatised soldiers never had to have Wessely as their expert at the time. I wonder what GWS veterans feel, do we have any connections with them in the uk?

***** *** ******. Shell shock doesn't relate to GWS or FND or CFS which no doubt will be implied somewhere. Weasel still manipulating. I'd love to see these

First page for me contains possibly questionable content. The actual part patients can fill in might however be very helpful. As it's available as pdf and word document the first page can be discarded if you wish. I'd be interested in any ideas that could substitute it. I personally would have...

This study was funded 2012, started 2013 but I don't remember seeing a final paper published within th results, does anyone? Thank you. https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/sws-and-daytime-functioning-in-chronic-fatigue-syndrome-saffe/

Just to point out Sonya chowdhury started attending WHO stuff at Geneva 2-3 -4 (poor memory) years ago. I can't understand the long post above to know when fresh concerns over WHO started. AFME might have problems by not really recognising any difference between CFS and ME.

Merged thread

Thanks @Trish

Just is it metabolic? That might not even be the right terminology, metabolomic might be. Other explanations of weakness to me could be being impaired neuro signalling, other causes of cell sickness, the brain getting inappropriate signals or over loaded or wrongly reacting with excessive...