Search results

I and others thought it might be useful to have a thread where people can post any training courses they come across that are dodgy or have incorrect/old/false information about ME or CFS. At this stage it is purely for future reference purposes. Thanks. If you add any please could you give...

RCPCH Progress curriculum see page 22: Leadership and team working: Promotes an open culture of learning and accountability by challenging and influencing colleague’s behaviour Patient safety: Applies appropriate procedures to both prescribing and clinical care situations and manages risk...

There are other implications for this talk; RCPCH see my post here: https://www.s4me.info/index.php?posts/29076/ " Preparing for RCPCH Progress (2018 curriculum) This section provides information on the new curriculum for paediatric training, which launches in August 2018" " The RCPCH...

BBC news quote by the paediatrician Dr Esther Crawley from Voices from the Shadows website. "The activists have their own strange beliefs about exercise. It has never harmed anyone with ME...." quote taken from Countrygirls notes at Crawleys last talk.

Would John Bercow be excluded (as Patron of MEA) ? Hopefully Charles Shepherd has put out some feelers.........?

I emailed David Marks to ask for his help: eta: he's pinned it

Is anything EC does? Apart from slag us off that is.

Serological profiling of the EBV immune response in Chronic Fatigue Syndrome using a peptide microarray Madlen Loebel, Maren Eckey, Franziska Sotzny, Elisabeth Hahn, Sandra Bauer, Patricia Grabowski, Johannes Zerweck, Pavlo Holenya, Leif G. Hanitsch, Kirsten Wittke, Peter Borchmann...

"Meet the Professor Sessions Meet the Professor Sessions will be held on Wednesday, May 30 and Thursday, May 31 between 07:00 and 07:50. There is no need to register for these sessions. If the room is full you may need to choose to attend a different session. " "Participants are encouraged to...

As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd take a look at the NICE guidelines for EBV. " Management How should I manage a person with suspected or confirmed glandular fever? Give information...

Don't know if this has been posted and am loath to give it its own thread basically advertising the Lightning process. " After a lifetime of calamity and chronic anxiety, Liz Jones enrolled on a course that claims to use neuroscience to reprogramme the brain and heal the body"...

The programme will feature Cerys who was diagnosed with M.E. and describes how the illness has impacted her life. not listened to it yet: http://www.bbc.co.uk/programmes/b09k0n8y eta: I got this from the MEA twitter; from what I've just heard the girl has not actually been diagnosed with ME...

Elevated brain natriuretic peptide levels in chronic fatigue syndrome associate with cardiac dysfunction: a case control study Cara Tomas,1Andreas Finkelmeyer,1,2Tim Hodgson,2Laura MacLachlan,1Guy A MacGowan, 1,3Andrew M Blamire,1,2Julia L Newton1,4...

Cort Johnsons article: " Urgency: Ron Davis and His (Non-NIH Funded) ME/CFS Collaborative Research Center Urgency Those ten NIH research center proposals contained a hidden gift. Of the ten grant applications, seven failed, leaving at least 21 potential individual research grant applications...

Could someone tweet the link to Voices from the Shadows.............. http://voicesfromtheshadowsfilm.co.uk/ maybe if they see the reality of the harm they are helping to perpetuate?

Old stuff (ie from March 2017 Standing up for Science 'debate') but I thought important to have over here:

“I don’t want to come down like a ton of bricks on Esther Crawley because I think she’s doing her best,” Really? Although not recent, this highlights the totally inaccuracy of ECs 'claims': http://voicesfromtheshadowsfilm.co.uk/news-2/ "One of my friends has a daughter who is ill with severe...

I thought PEM might cause a few probs on this issue (see my first post); as @Invisible Woman said, I realise it can be complicated. Maybe another poll on what is experienced as part of PEM(?) The problem here is what one person considers nerve pain may be different to someone else......eg...