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Not sure if this has been posted elsewhere; How NICE is improving patient safety Annual patient safety update covers the period from September 2019 to September 2020 25 November 2020 Professor Kevin Harris, NICE's senior responsible officer for patient safety...

full text: https://www.karger.com/Article/FullText/512166

Post Exertional Malaise Timecourse in ME from the Workwell Foundation https://workwellfoundation.org/wp-content/uploads/2020/03/WW-PEM-Timecourse.pdf

Letter to the Editor ME (Ramsay) and ME-International Case Criteria (ME-ICC): two distinct clinical entities F. Twisk full letter https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02617-0

HSJ podcast: Long-COVID care cannot be delayed any longer (19 November 2020) Posted by PatientSafetyLearning Team https://www.pslhub.org/learn/coronavirus-covid19/patient-recovery/hsj-podcast-long-covid-care-cannot-be-delayed-any-longer-19-november-2020-r3599/?tab=comments#comment-288

https://www.medicinejournal.co.uk/article/S1357-3039(20)30229-2/pdf https://scihubtw.tw/10.1016/j.mpmed.2020.09.007 Psychiatric aspects of general medicine| Volume 48, ISSUE 12, P765-768, December 01, 2020 fish and chips paper.

that still includes us eta: ie ME/CFS is included and 'treated' as MUS

happened back in september https://www.s4me.info/threads/hi-im-brian-hughes.5526/page-7#post-289685

also very dangerous, as many newly diagnosed patients are directed by the NHS to read this book.

Thread about the book here: https://www.s4me.info/threads/the-puzzle-solver-by-tracie-white.18530/

TC explains the 'biology' of CFS. From TC & Mary Burgess book 'Overcoming chronic fatigue'

same as in CODES project "TC talks briefly about the CODES trial .. and said that the therapy improved Quality of Life for the patients."...

I posted this on another thread NHS site on MUS: https://www.nhs.uk/conditions/medically-unexplained-symptoms/ NICE: https://www.evidence.nhs.uk/search?q=medically+unexplained+symptoms one listing at last link...

very interesting program on BBC https://www.bbc.co.uk/iplayer/episode/m000pjr1/lockdown-10-following-the-science "The scientists behind the scenes tell the extraordinary story of what really happened in the run up to the first lockdown, when ministers claimed to be 'following the science'."

exactly this; TC has said as much fairly recently although not using MUS: " The term 'somatic symptom disorder' which is very controversial but I really like it. I like it because the same model can be applied irrespective of the cause of the symptom"...

The more I think about these severity level labels the more I think they should be scrapped altogether. They can be applied to the individual symptoms as per most other illnesses eg pain, fatigue but as an overall label they can be misleading. I would like to see a disability scale similar to...

https://www.s4me.info/threads/nice-me-cfs-guideline-draft-published-for-consultation-10th-november-2020.17687/page-18#post-303214

see https://www.s4me.info/threads/bacme-position-paper-on-the-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-oct-2020.17360/#post-295616 "our NHS service has for some time been moving away from a GET approach" If this is true then you have to question the ethics of...