'Medically unexplained symptoms' (MUS, PPS, SSD) : Time for NICE to review the 'evidence'?

Sly Saint

Sly Saint

Senior Member (Voting Rights)
I posted this on another thread

Nightsong said:
That is the fundamental assumption at the heart of the PPS/MUS model: that all of the conditions categorised as such have a common psychosomatic origin and so can be managed in an identical manner.
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exactly this; TC has said as much fairly recently although not using MUS:
"
The term 'somatic symptom disorder' which is very controversial but I really like it.
I like it because the same model can be applied irrespective of the cause of the
symptom"
https://www.s4me.info/threads/cogni...20-goldstein-chalder.15251/page-4#post-273720

I know Keith Geraghty and others have written papers on the 'problems' with the whole MUS model but a clear, no holds barred (such as @Jonathan Edwards submission to NICE) piece would be very useful.
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NHS site on MUS:
https://www.nhs.uk/conditions/medically-unexplained-symptoms/

NICE:
https://www.evidence.nhs.uk/search?q=medically+unexplained+symptoms

one listing at last link:
https://patient.info/doctor/medically-unexplained-symptoms-assessment-and-management


We all know that those responsible for most of the bad research on ME/CFS are also regarded as the 'experts' on MUS and churning out more and more research using the same 'formula' and spinning the results.

Now NICE appear to have understood the problems with this type of research for ME, it's high time they took an equally thorough look at the evidence for 'MUS et al.'
 
Kirsten said:
Absolutely. I'd wait until the ME NICE guidance has been confirmed and we see they've not walked it back. But i would hope we wouldn't forget those still stuck in the MUS disaster, and continue to fight for them too.
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Quite. No point labouring the point too much to them about how many gigantic cans of worms they will be opening if this guideline goes through as we hope it will. I know they will have a good inkling, but no point making it more obvious until past the point of no return.
 
Sly Saint said:
that still includes us
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Oh for sure. 90% are undiagnosed. This won't change any time soon. It may take years for basic knowledge to filter through. Meanwhile most will be subjected to the void of MUS/FND. Change will help those diagnosed and recognized, but most won't be as long as this monster hangs around.

Resetting things on ME is only one part. The entire psychosomatic paradigm needs to be extinguished, it won't be safe until it is done and gone. It wouldn't take much, simply removing the many exemptions that allow psychosomatic "research" to be published despite not meeting any scientific standards. But it will be a huge fight for years to come.
 
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