Search results

  1. Graham

    inTune Choir is Going Blue for ME Awareness Day at Wheal Martyn, St Austell, Cornwall 3pm on Saturday May 12th

    Great stuff. It's a shame that the choir website and the Wheal Martyn website have not yet included it on their programmes, or I could pass the link on.
  2. Graham

    A song for ME: Blowin' in the wind

    I'm impressed, Robert! Duly posted on my Facebook account. (I see you borrowed some of the Sunflower singers!)
  3. Graham

    What is Action for ME's current (March 2018) position on the PACE trial?

    Don't fret, Alvin: I didn't take it that way. My pleasure is that they are starting to respond, rather than stonewalling. They still have a long way to go, but they is "establishment" at their core, so this is a big step for them. I have come across a number of patients who have found CBT...
  4. Graham

    What is Action for ME's current (March 2018) position on the PACE trial?

    I'm a bit late to the party, but I'm really pleased that AfME is taking a proper look at its stance on PACE, CBT and GET, and that Clare continues to participate in discussions here. I have this little private fantasy that one day all the ME groups will realize that although there are...
  5. Graham

    Online ME Quiz content help

    It's a fun little quiz, with a few typos, but the danger with this sort of thing is that, in an effort to create something simple, you end up with things that aren't quite right. There are two sorts of problems. The first is that, say, with the question on donating blood, or on research...
  6. Graham

    Online ME Quiz content help

    Nice idea! I'll leave my subconscious working on it this afternoon.
  7. Graham

    PACE trial TSC and TMG minutes released

    It's strange, but I seem to have a 45 minute battery. I can potter along for about that amount of time, then I need to rest. So that's how long I take the dog out for a walk: that's my maximum driving range: when I used to work at maths problems, that was my limit before I stopped being able to...
  8. Graham

    PACE trial TSC and TMG minutes released

    This is a strange one - I could go up three flights of stairs and only be puffed temporarily. I'd not be able to run up them two at a time like I used to: it would be a steady plod. And yet so many of you have so much difficulty with that, it makes me feel as if my ME must be mild. Yet it has...
  9. Graham

    PACE trial TSC and TMG minutes released

    I actually wrote to the editor and explained what I wanted to do - to extract the data from the graphs and use them in an article on CBT and CFS - and explained that I had tried to get hold of the data from the authors and had been refused - "vexatious". The editor, who I will leave as...
  10. Graham

    PACE trial TSC and TMG minutes released

    Someone mentioned a link to a Powerpoint set of slides of the graphs, and they were in much higher resolution. I copied them into Photoshop, and constructed a grid to the appropriate size so that I could read the values more accurately, which I did. Then, while asking an editor if it was...
  11. Graham

    PACE trial TSC and TMG minutes released

    There are two graphs - one marked Fitness and one Borg. They didn't combine the results. There is a description of all the tests in the appendix to Chalder et al's paper on rehabilitative therapies for cfs ... They did think of using lifting weights for the Borg assessment, but decided...
  12. Graham

    PACE trial TSC and TMG minutes released

    Oh Esther, my faith in your invincibility has been shattered! It's the acceleration due to gravity, to change a weight in kg into a force in Newtons. The values that I worked out from a large version of the fitness graph were mean (calculated s.d. from displayed confidence interval) SMC 1.83...
  13. Graham

    PACE trial TSC and TMG minutes released

    I'm brain dead at the moment, and almost catching up, but here are the notes I made at the time. There were two different ways of analysing the results of the step test: one was more objective, the other subjective. The big problem, of course, was that they were self-paced, and most of the...
  14. Graham

    Tai Chi Equals or Betters Aerobic Exercise in Fibromyalgia

    Interesting how another proponent of mind-body therapy only reports on mind assessments and relegates body assessments to a later date.
  15. Graham

    What is Action for ME's current (March 2018) position on the PACE trial?

    Thanks for responding Clare, and I'm sure you are feeling swamped and something of being "piggy in the middle" as you explain AfME's position. Please remember that these comments are directed at AfME's assessment of the evidence, and not at you personally: we are pleased that you are open to...
  16. Graham

    How to involve your MP in Carol Monaghan's PACE campaign + template email

    It is important though to ask folk to add something of their own to the letter. MPs get a lot of emails, and can just skip over standard copies. If you really want to make an impact - write. Half a dozen people writing to an MP will really wake them up to the problem.
  17. Graham

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    No, no, @Binkie4 , your comment was perfectly understandable and amusing. This is just another tedious example of my weird sense of humour. I need to explain here that I was a maths teacher, and we are trained to be weird. Obviously, some people escape through the net and remain normal (don't...
  18. Graham

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    I don't want to see MEMarge thirded. She's much too nice a person for that to happen. So please explain: first, second, third, fourth, fifth versus whole, half, third, quarter, fifth: what idiotic counting system set up that confusion?
  19. Graham

    What is Action for ME's current (March 2018) position on the PACE trial?

    I was a member of AfME for a very long time, and it was brilliant in the early days when we knew so little. I stuck with it through the early PACE years because I hoped that reasoning would win through, but eventually lost heart. I am perfectly able to accept their membership of this forum...
  20. Graham

    United Kingdom: Sussex & Kent ME/CFS Society News

    Both Bob and I were members of the S&K Society a long while back. It's how we met, and how I met a number of other good folk, so it can't all be bad. But Bob and I crossed swords with the "society" over the promotion of the Lightning Therapy, and the bullying that was going on when members...
Back
Top Bottom