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How many other bio banks/ DNA sampling data is there worldwide? A coordinated, standardised format may be able to glean existing data . Both omf and klimas have requested and received genetic data. Could some who have forwarded this previously be interviewed ( Skype?) / complete a...

Re the Karl Morten ATP profiles test replication ( which showed no significant difference on fresh blood) - has anyone looked into why there is such a big difference between controls and pwme after 24 hours ( would that not give a clue as to something awry?)

Th2 shift has also been suggested for extended fight or flight mode . In anticipation of an oncoming battle your body anticipates wounds and bacteria . In mice it seems this prolonged response triggers epigeneric changes ( now a new normal) some of which are heritable. I looked at this years...

The common feature of throat/ underarm lymph glands being swollen and problematic in PEM has been discussed. Given there are lymphs in multiple other places, could these account for other symptoms, eg at head/ neck contributing to increased pain: in lungs perhaps to air hunger: in brain...

This

perhaps he knows something we dont't

Yes. I had the same reply today too

Healthy weights may be a bit of a misnomer. The rise of the TOFI ( thin outside fat inside) whilst some overweight individuals are metabolically healthy suggests a complexity that does not lend itself to broad generalisations. The type of adipose tissue and its role in signalling seems to be a...

Mid life rules out children

Here they are being rediagnosed with FND

I have emailed also - Dear Congressman Bergen I’m writing to thank you for your support for those with ME/CFS. As you will know this is a worldwide issue, and the US has taken a lead in its recent assessment of GET as being an ineffective treatment option for ME/CFS. Whilst we are not in the...

paper attached

Thanks @Sly Saint Nisai and Interhigh have been providing virtual real time with recorded lessons ( amongst other providers for over a decade). Many parents who can fund it use it and it is a gamechanger. Some LAs will find Nisai in England , Wales and NI. The IT is not an issue, the...

Is it normal practice to publish a " taster" and invite comments prior to publication of the full piece? It just seems weird.

Interesting. We have done 2 hair tests, around 6 months apart to track electrolyte/ cation status The second test showed improvement in electrolyte ratios , but a high level of mercury ( not high previously) and increase in aluminium levels. My assumption was that improvement in methylation...

Over the past 3-4 weeks my daughter seems to have developed a SNS stuck in overdrive. It is not sustainable, making things worse. I have a call with GP this morning, but am not sure what can be used to support/ address things. If anyone has been in a similar position and has any pointers , i'...

Great video again @Adam pwme . Will share as widely as i can .

This is total mince . ( Scottish term akin to being utter rubbish) ETA the funding being turned down, not the research. I think this just evidences @Jonathan Edwards comments re MRC.

Subsets would only be relevent if they could be identified pre exercise. It never ceases to amaze me that If the starting point is to " first do no harm" , if you cannot identify who will be harmed, how is any " treatment" ethical. This is not a bit of extra muscle ache!