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When you've completed your notebook, do contact Guinness for your award.

I got an email (non)response from WebMD after I asked them to update their obsolete Healthwise ME/CFS (2011) and Chronic Fatigue Syndrome (2015) content. Edit: Note my personal email is separate from Healthwise's own efforts to get WebMD updated (no update on that at this time).

20 city blocks in a mile. Usually a "block" actually means a "city block", which is generally ~1/20 of a mile in the US, but it varies by city. Noncity blocks are usually double whatever a city block is. Where I live, if I walk north/south, the blocks are 1/10 of a mile. If I walk east/west...

A recent Yale article seems to be an update of Kriegel's work. Small Steps Lead to Big Results April 3, 2018 https://medicine.yale.edu/whr/news/article.aspx?id=17076

Every dog has his day. ;)

And boom! Just like that. A Healthwise rep says their WebMD account manager had already been in contact with WebMD about updating to the latest Healthwise product version (so it sounds like the issues extend beyond just ME/CFS). They'll check and let me know the status of this.

Healthwise said if I had any more questions, just ask. So I asked Healthwise if they would reach out to WebMD about updating their quite old ME/CFS content.

Thanks for the heads up @arewenearlythereyet I just sent a message to WebMD asking them to please immediately update their Healthwise content for "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" and "Chronic Fatigue Syndrome". These Healthwise sections were last updated in 2011 and 2015...

One of the nice things is that so many places subscribe to Healthwise. Including WebMD. So when Healthwise content updates, so should WebMD (eventually). And perhaps this will then propagate WebMD content in the UK? (speculating here). Edit: It does appear WebMD is still using an old version...

Yes and no. Yes, the Healthwise update should trickle down and update the content for every healthcare organization that subscribes to Healthwise. No in that doctors are not obligated to follow Healthwise recommendations. So, in theory, Kaiser Permanente could have the updated Healthwise...

I sent a quick thank you note to the Bateman Horne Center, as Healthwise mentions their recent "Clinicians' Summit" was a primary reason for dropping GET/CBT.

The IOM report Clinician's Guide says (bolding mine): Physicians should diagnose ME/CFS (SEID) if diagnostic criteria are met following an appropriate history, physical examination, and medical workup, including appropriate specialty referrals. It is essential that clinicians assess the...

I sent a message on the Ruqsana-Begum.com website politely asking if she would be willing to share her "strict diet and training regime", or give some tips on how to manage Myalgic Encephalomyelitis symptoms. I'll post if I get a response.

https://www.sciencedaily.com/releases/2018/04/180409185331.htm

Here are the current GET/CBT Healthwise modules on the Kaiser Permanente website: GET - https://healthy.kaiserpermanente.org/health/poc?uri=content:health-encyclopedia&ctype=kb&locale=en-us&hwid=zx1021 CBT -...

In prior contact with Healthwise, they had cited NICE (and Cochrane and ancecdotal reports) as evidence to continue recommending GET/CBT. I'm very glad Healthwise didn't wait around for NICE to change course.

I do not feel legal action is the right approach. Besides, the California Department of Managed Healthcare already ruled that Kaiser Permanente has followed their plan obligations. There is no law against recommending GET+CBT+antidepressants for ME/CFS. There is no legal requirement that a...

You can also send Healthwise a note on their website: https://www.healthwise.org/contact.aspx

Those on Twitter can thank @Healthwise for their commitment to remove GET and CBT from their ME/CFS content. It never hurts to thank people for doing the right thing.

Thanks. My other iron still in the fire is a "Scope of Practice" complaint submitted to the Medical Board of Calfornia. I am asking the medical board to rule that GET/CBT are inappropriate ME/CFS treatments in the State of California ("outside the scope of practice").