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the associated paper for this blog is now coming up as a BMJ ad on Google searches.

The new NICE guidelines: the pain is not ‘all in our heads’ https://www.palatinate.org.uk/the-new-nice-guidelines-the-pain-is-not-all-in-our-heads/

Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systemic Review and Comparison of Clinical Presentation and Symptomatology Abstract Background and Objectives: Long COVID defines a series of chronic symptoms that patients may experience after resolution of acute...

Only if AfME would at long last make a statement condemning Crawleys research. To date, I don't think they have ever spoken out against any of it. eta: and although MJW has now retired, when AYME were still in existance they were Crawleys main 'patient support' used to get REC approval for...

A Consumer Sleep Tracker Researchers Can Actually Use https://labblog.uofmhealth.org/body-work/a-consumer-sleep-tracker-researchers-can-actually-use research paper: Sleep stage prediction with raw acceleration and photoplethysmography heart rate data derived from a consumer wearable device...

I really don't like this new format for posting research papers as every quote has the OPs name attached; ie 'Sly Saint said'. eta: and I get alerted every time something is quoted from the abstract.

Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 " Editor's summary In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...

Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771 preprint Is it time to ACT? A qualitative study of the acceptability and feasibility...

https://www.virology.ws/2021/04/23/trial-by-errors-why-have-experts-in-mus-spent-ten-years-mis-citing-a-study-about-costs-to-the-nhs/

Job advert: https://jobs.exeter.ac.uk/hrpr_webrecruitment/wrd/run/ETREC107GF.open?VACANCY_ID=782145VrC4&WVID=3817591jNg&LANG=USA https://medicine.exeter.ac.uk/people/profile/index.php?web_id=Siobhan_ODwyer

I posted this because while doing a general search this came up: https://www.medsci.ox.ac.uk/news/treatments-offer-hope-for-chronic-fatigue-syndrome-cfs-me/search?category=coronavirus-covid-19 the actual article it refers to...

obviously not new. " Summary Background The PACE trial found that, when added to specialist medical care (SMC), cognitive behavioural therapy (CBT), or graded exercise therapy (GET) were superior to adaptive pacing therapy (APT) or SMC alone in improving fatigue and physical functioning in...

I wonder if these seizures would come under dissociative seizures (as treated with CBT by Chalder).

yes, which researchers here in the UK are to be 'trusted' to carry out genuine biomedical research? We are in the mad situation where most of the funding is going to the likes of Chalder, Crawley and co and then patients funding people like Keith Geraghty, and David Tuller to expose the...

Merged thread Article: People with Chronic Fatigue Syndrome Are Less Likely to Reach Out For Support https://www.verywellhealth.com/chronic-fatigue-syndrome-social-support-5179923

No more 'research' on 'therapies' until they have a better idea as to what is causing the problems.

I have found it infuriating in some pieces/interviews about Long-covid (in the UK) where scientists/doctors are asked what do they think is causing it and they trot out some of the hard fought for ME research findings. Of course they rarely acknowledge that these hypotheses are taken straight...

prevention of deterioration, not 'treatment' or 'rehabilitation' should be main priority until there is firm evidence that any 'treatment' works and those administering it know what they are doing.

sci hub link https://www.sci-hub.ee/10.1016/j.autrev.2020.102527

Abstract Chronic Fatigue Syndrome or Myalgic Encephaloymelitis (ME/CFS) is a frequent debilitating disease with an enigmatic etiology. The finding of autoantibodies against ß2-adrenergic receptors (ß2AdR) prompted us to hypothesize that ß2AdR dysfunction is of critical importance in the...