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  1. Sly Saint

    A general thread on the PACE trial!

    https://www.nickross.com/science-evidence/ Re Healthwatch UK; they did include @Caroline Struthers wonderful piece in their Newsletter: (page 8) https://www.healthwatch-uk.org/images/Newsletters/Newsletter_114.pdf
  2. Sly Saint

    The biology of coronavirus COVID-19 - including research and treatments

    Huge study supporting ivermectin as Covid treatment withdrawn over ethical concerns https://www.theguardian.com/science/2021/jul/16/huge-study-supporting-ivermectin-as-covid-treatment-withdrawn-over-ethical-concerns
  3. Sly Saint

    New Name For "Brain Fog"?

    Memory and Brain Fog https://www.psychologytoday.com/gb/blog/happiness-is-state-mind/202107/memory-and-brain-fog-part-1
  4. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sure Signs You've Already Had COVID, Says Dr. Fauci https://www.eatthis.com/news-sure-signs-long-covid-fauci/ Hmm, seems like I've 'had covid' for many, many years:facepalm:
  5. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) - a complex disease that has come of age with the SARS-CoV-2 pandemic Seminar presented by Emeritus Professor Warren P Tate FRSNZ CNZM (Department of Biochemistry) Thursday, 29 July 2021 Zoom details (free)...
  6. Sly Saint

    UK Action for ME - policies, actions and publications - discussion thread

    "Principal Medical Adviser from 2010-2015 for Action for ME" https://me-pedia.org/wiki/Alastair_Miller (Sonya has been CEO since 2012)
  7. Sly Saint

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Tuesday 10th August 6-8pm The new NICE guidelines are going to be published on the 18th Aug. Presumably the final draft will already be known by the time of this event so it will be interesting to know what they are planning and how they will 'adapt' current treatment practices; will they stop...
  8. Sly Saint

    Immune Markers Are Associated with Cognitive Performance in a Multiethnic Cohort: the Northern Manhattan Study, 2021, Elkind,Hornig et al

    Highlights • Immune molecules associate with cognition in an ethnically diverse population. • They add information about cognition beyond traditional risk factors like age and vascular risk. • Chemokines CCL11 and CXCL9, the neurotrophic factor HGF, and serpin E1 most consistently associated...
  9. Sly Saint

    News from Australia

    not PG :)
  10. Sly Saint

    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    Trial By Error 23 January 2019 ttps://www.virology.ws/2019/01/23/trial-by-error-action-for-mes-employment-advice/
  11. Sly Saint

    Fibromyalgia Detection Based on EEG Connectivity Patterns, 2021, Martin-Brufau et al

    Abstract Objective: The identification of a complementary test to confirm the diagnosis of FM. The diagnosis of fibromyalgia (FM) is based on clinical features, but there is still no consensus, so patients and clinicians might benefit from such a test. Recent findings showed that pain lies in...
  12. Sly Saint

    Nickel allergy?

    minor update; the garden is proving to be a minefield. I have 'discovered' that in addition to bamboo plants, conifers, and fig tree sap, that courgette (and other similar plants eg cucumber) also cause a bad reaction. In fact any plant that has little hairs on it seems to also be a danger, as I...
  13. Sly Saint

    ... atopy and autoimmune diseases are associated with functional dyspepsia and IBS, independent of psychological distress, 2019, Kolowski et al

    Population based study: atopy and autoimmune diseases are associated with functional dyspepsia and irritable bowel syndrome, independent of psychological distress Summary Background The pathogenesis of functional GI disorders (FGIDs) is uncertain. However, underlying immune activation and...
  14. Sly Saint

    Vulvodynia; next target "MUS" for ACT

    Just thought I should add that one possible cause of Vulvodynia is oxalates (see tag for thread on this) see https://www.vuvatech.com/blogs/care/how-the-vulvodynia-diet-alleviates-symptoms
  15. Sly Saint

    Vulvodynia; next target "MUS" for ACT

    one to look out for: 'psychological flexibility' (the model underlying ACT). "Psychological flexibility is the ability to stay in contact with the present moment regardless of unpleasant thoughts, feelings, and bodily sensations, while choosing one's behaviors based on the situation and...
  16. Sly Saint

    COVID-19 Infection and Subsequent Psychiatric Morbidity, Sleep Problems & Fatigue: ... an English Primary Care Cohort, 2021, Chalder, Chew-Graham

    COVID-19 Infection and Subsequent Psychiatric Morbidity, Sleep Problems and Fatigue: Analysis of an English Primary Care Cohort of 226,521 Positive Patients Abstract Background: While some people who have had COVID-19 experience fatigue and sleep problems long after the acute phase of the...
  17. Sly Saint

    News from Scotland

    Lotto boost for ME group https://www.dng24.co.uk/lotto-boost-for-me-group/
  18. Sly Saint

    Article Guardian: First year of pandemic claimed lives of 25 young people in England

    Observer (Guardian) Letters: Awful plight of those with ME https://www.theguardian.com/theobserver/commentisfree/2021/jul/18/dont-blame-us-pensioners-for-financial-shortfall-letters
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