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    Who was it that said being in support groups leads to poor outcome?

    Chronic Fatigue and its Syndromes Wessely, S., Hotopf, M., & Sharpe, M. 1999 OUP has: References: 4. [posted above] Follow up of patients with fatigue presenting to an infectious diseases clinic. Sharpe M, Hawton, K, Seagroatt V, Pasvol G, Br Med J 1992...
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    Workwell Foundation letter to healthcare providers: Opposition to GET for ME/CFS

    Thanks very much for contacting Todd Davenport, @Keela Too. I had a look at his tweets to you and the Blind Spots editorial he tweeted that's been discussed elsewhere here. Prima facie Workwell has come out reasonably strongly against GET. What is confusing is that four of the five authors of...
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    Workwell Foundation letter to healthcare providers: Opposition to GET for ME/CFS

    The letter was published as above in ME Essential Issue 146 Mid Summer 2018: Reference 10 is: Conceptual Model for Physical Therapist Management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Todd E. Davenport Staci R. Stevens Mark J. VanNess Christopher R. Snell Tamara Little...
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    A sincere thank you for your years of persistent and meticulous advocacy, @Dx Revision Watch. I was very sorry to read that you're retiring from advocacy, and of the way in which recent events have played out. I wish you and your family all the very best.
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    IAPT under the microscope, 2018, Marks

    The depression symptom measure is, I think, always the PHQ-9 irrespective of condition. Anxiety/MUS symptom measure depends on the so-called problem descriptor, but is GAD-7 for several problem descriptors. In the case of MUS referrals, it depends on the condition. In CFS it would be PHQ-9 for...
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    IAPT under the microscope, 2018, Marks

    From The Improving Access to Psychological Therapies (IAPT) Pathway for People with Long-term Physical Health Conditions and Medically Unexplained Symptoms Full implementation guidance — section 2.2, pp. 13-15: [PDF] https://www.rcpsych.ac.uk/pdf/IAPT-LTC _Full_Implementation_Guidance.pdf
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    The JHP Special Section: http://journals.sagepub.com/toc/hpqa/current
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    New Liberty Protection Safeguards will prioritise timely care of the vulnerable - Simon Wessely

    I've also wondered about this. Patients who are sufficiently impacted by confusion or dementia that their inpatient stay may be prolonged for that reason are going to provide informed consent to participate in the HOME Study? I would have thought those who are not impacted or are somewhat...
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    Marathon runner forced to quit work after developing ME claims diet change gave him his life back

    I think Yorktest is or at least used to be an IgG test with superficial veneer of plausibility from allusion to IgE mediated allergy, but no real research basis. I'm not entirely sure how they go about testing (as it were) such a broad raft of foodstuffs.
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    There are two Patient.info pages, a conditions page: https://patient.info/health/tiredness-fatigue/chronic-fatigue-syndrome-myalgic-encephalomyelitis And a medical professionals page: https://patient.info/doctor/myalgic-encephalomyelitischronic-fatigue-syndrome-mecfs-pro Both pages were...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    What's the only thing worse than a misdiagnosis? A musdiagnosis (ba-doom tish)
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Happy to look at coordinating on something on the patient.co.uk page. Whole sections (which taken together comprise the lion's share) of the Insight Healthcare site look problematic to me. There is also a medically unexplained symptoms page, which refers to ME & CFS: Good to see them coming...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    It looks that way as far as the CFQ goes. I'm aware of this from the IAPT-LTC Full Implementation Guidance: Both Chalder Fatigue Questionnaire and PHQ-9 are bolded. "Notes: Recovery, reliable improvement and reliable deterioration rate calculations should be based on the pair measures...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    The F45.0 coding is for patients referred for MUS for IAPT national reporting purposes in this instance. "For those in integrated care with a medically unexplained symptom (MUS), ‘Somatization Disorder’ (ICD-1016 code F45.0) should be selected as the primary problem to identify their specific...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Thank you, @Action for M.E., for your response. Action for ME will be aware of the Employment Adviser in IAPT pilots that have sought to embed Employment Advisers in IAPT services, and this in increasing numbers whilst flowing additional employment-related information about patients for IAPT...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    IAPT certainly isn't new; generic IAPT was rolled out nationally in 2008, and the IAPT-LTC Pathfinder Project was rolled out in April 2012. IAPT-LTC is currently being rolled out nationally. (Although it is called IAPT-LTC, it actually encompasses both LTC and MUS referrals.) Others elsewhere...
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Though in reality, I'm not sure there's that much concern who is referred for what. From the IAPT LTC/MUS Pathfinder Evaluation Project Interim Report (2013)
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    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    IAPT-LTC is intended for people with anxiety or depression "in the context" of a LTC, and for people with MUS with no requirement for co-morbid anxiety or depression. The IAPT-LTC Full Implementation Guidance trots out the "two-thirds of people with LTCs have also have a mental health problem"...
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