Search results

I love MC Escher drawings, they look like the inside of my brain

Congratulation @Gary Burgess Lovely to wake up to some happy news :) I wish you both a wonderful future together

It was my OT that got me an NHS wheelchair a few years ago. It was a lot of faff, but going to the hospital to pick the size i needed etc. (I have a teenage sized one even though i’m 40 haha) wasn’t too bad of an experience! Benefits only acknowledge nhs wheelchairs. If you buy it yourself it...

Wish i could like your post ten times just for the description :)

I feel like printing it off and framing it :) I feel befuddled and discombobulated but in a good way. My brain doesn’t know how to respond to reading accurate information for a change :)

That’s a good point to make when one of them throws that line at us, especially in the beginning. They are often right that we do have false illness belief just the opposite version of the one they’re peddling.

Ditto o_O

:laugh: :rofl: :laugh: :rofl: :thumbup:

That would be a great cover and title of a book on this topic :)

RIP Bob. We all love you x

I’ll be here

During my early bedridden years, mobile phones didn’t even exist. The only info on ME was two tatty library books and they were crap :confused: Being isolated back then, really meant complete isolation. My version of social media was letter writing to people all over the world. Waiting to see...

Our future is too frightening to think about. Every time i feel sorry for myself in the present, the only thing i have to cheer myself up is, these are probably ‘the good times’ in relation to what’s coming :(

Ha i was there just a few weeks ago! but had to miss going inside, didn’t have the strength to walk around it, and also get back to accomodation, its bloody massive :ill:

God that man’s such a creep. Can’t bare looking at any photo’s of him especially when i don’t have my sick bucket within reach

I've just found this article online that talks about brain oscillations viewing the world through successive snapshots, this sounds similar to what i was talking about, only maybe my brain is sticking or freezing and i'm physically seeing the snapshot...

I've gotta write this one down before i forget and while i'm still in the middle of dying. This is one of those long forgotten weird ones that i haven't noticed for 20 years since the early days of 40 plus symptoms a day. I'm currently in freefall since russia, fighting a fever, glands...

@Pibee this is a great way to describe it, ie the body not consciously connected to the brain. I've suffered with this for 20 years, non stop for first 2 years. The conscious connection would also explain how we could temporarily get movement back and then just as quickly lose it again after a...

I've spent the last few years thinking i wasn't doing too bad on the allergy front completely forgetting that the sleeping tablets i've been using for years are also anti-histamines. I went to russia last week for my birthday and had to leave those tablets behind... By the time i got off the...

Excluding carbs from diet helps me a lot. I currently eat a maximum of 20g of carbs a day so barely any. Its great not having hunger pangs like carbs gave me constantly. (Its Usually only mental hunger pangs for the carb addiction anyway) I lost 10lbs in weight in a couple of months from...