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Then maybe change the heading from summary something more accurate. I think a lot of readers will look for a summary to read first to find out what the article is about. Or maybe add a sentence that reinforces that for clinicians the key is not to act on the basis of theory, but on the basis of...

I don't think the summary should include concepts not already covered. I think these paragraphs should be earlier in the article. A summary would, I think, draw out the key points from the whole article. _______________- A very worthwhile article, thank you.

Paragraph 1 should be UK National Institute for Health and Care Excellence (NICE) https://www.nice.org.uk/ ______________ A good summary of the effect on symptoms. Do you think you need to expand this to include that the exertion that triggers it is slight, and that PEM includes loss of...

more at link https://www.thereforme.uk/p/the-preventable-death-of-maeve-boothby

Alot of the differences are very small, and they don't seem to have corrected for multiple comparisons. I doubt most are clinically significant. This is about chronic fatigue, not ME/CFS.

posted here: https://www.s4me.info/threads/miranda-hart-british-comedian.14390/page-4#post-559220

@Maat, I have no idea whether the Cochrane review has been used by the RCP to support their comments. It was published on 2/10/19, so was available.

Mask, ventilation, air filtration, avoid crowds and indoor spaces...

Thank you.

That's a very clear explanation. Thank you.

Can you give us some clues about what is involved and what you are finding valuable?

I've linked this discussion from United Kingdom: Sussex & Kent ME/CFS Society News

Some discussion of experience with this group here: https://www.s4me.info/threads/what-do-people-want-me-to-ask-sonya-chowdhury-on-friday.40550/page-6#post-558609

Thread: Investigating unexplained fatigue in general practice with a particular focus on CFS/ME, 2016, Bansal

I haven't managed to read all the replies to this. I just want to say, I agree it's a big problem. I'm sure that before my last 10 or so years' experience of learning from discussion with others on forums, I would have been pretty useless as a patient rep advising on resources, even though I'd...

I think it's a really unfortunate coincidence. I gather from recent reviews of a political autobiography that yesterday, 10th October, is the publishing industry's big day for releasing books to hit the Christmas book market. Feel-good recovery stories are a key part of this, and it happens...

No suggestion it was 3-D printed, which I think would be impossible.

As I understand it, the patient group are AfME members. We have no reason to think they are from the Sussex group. This is what Sonya says about it in her recent letter...

I didn't read the article so negatively. It came across to me as someone who was very sick, gradually improved and while improving found joy in plants which helped her feel more positive.

According to the letter I received from Sonya, AfME does have a patient group to provide feedback on their work.