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Yes it was big news. I was really commenting on the SMC using him to comment and giving the background for those who didn't see. I assume the SMC were struggling to get people to back the LP.

It sounds like a eugenics conference with bad science and white supremacist speakers that UCL was unaware of. What I thought was interesting was it was organised by a honorary psychology professor James Thompson...

The problem with considering HR monitoring is if there is no supporting evidence in terms of research then it should not be in the NICE guidelines. If patients push certain things without evidence other stakeholders will push for their favoured (exercise or CBT) things equally without evidence.

I suspect if there is a change in the perceived number of patients who are severe then its due to patients giving up on doctors. But I've not seen any research showing any evaluation of the effect of the NICE guidelines.

I think this says more about Alistair Miller's understanding of good methodology than anything else. Its no wonder AfME were so bad when their former scientific adviser exhibits this standard of analysis.

In the IT industry startups provide a different avenue to R&D than the traditional internal investment model. Large companies are expected by the markets to generate profits and hence it is hard to absorb risk of large scale spending on research - it just looks bad when markets have a short term...

I think tea and sympathy may be far better. CBT is about getting people to change thoughts and behaviours in a fairly mechanistic way.

I would prefer a genuine 'don't know' category as it reflects the lack of understanding and perhaps could be used to push for more research. But the concern with a 'don't know' category is that psychiatry has tried to grab and control this through MUS; an area that just seems to be based on a...

Yes I agree we need to keep the message very simple so that it cannot be misunderstood. The guidelines should include reference to treating symptoms using standard methods so for example if someone is also suffering from depression due to being ill and CBT could help with this (I've no idea if...

In the mid 2000 there was a report in the US on cyber bullying and one of the issues they raised was that for kids most of the cyber bullying came from people they knew in schools. But unlike more traditional bullying it didn't just happen when someone was at school but being online allowed the...

AYME folded not AfME but I think that is what you meant.

It sounds like AfME may be changing their story on what the funding was given for. At one point they seemed to be suggesting it was given for Crawley's specific project rather than for "the alleviation of childhood suffering"

In terms of severe patients I think it is worth ensuring the guidelines list symptoms that people do see as part of ME sometimes doctors seem surprised at the range of symptoms people suffer from. The other thing is access to medical care for the house bound. I think the current guidelines do...

I have wondered in the past if there was room for a lot of innovation around wheelchairs. Both in terms of the physical construction to help get over different surfaces etc as well with electric wheelchairs I wondered if they are utilizing battery improvements developed for electric cars and...

I think they are good points. I suspect that there needs to be an underlying subtext that patient groups have looked at the research and understand the methodology and evidence and NICE can't get away creating bad advice not supported by the evidence. I think you turning up along with well...

I don't think that is the important question. She may have been harassed by some individuals or may not without evidence and prosecutions we will never know. But there are two things that the harassment stories seem intended to lead to 1) A protection of the research/ethics from people...

I may be able to set something up here so that unregistered users could vote but I'm not sure if that would deal with guests coming back.

I think this was the first trial they had done. But they do seem somewhat basic and I would have thought should have been picked up with an internal review. I think sloppy stuff should raise issues with the ethics committee and mean they look more carefully but in this case they didn't seem to...

Does she have this role? She has a role in running the Bath clinic but I don't think she was on the local authority lists as a community paediatrician. Perhaps she did a long time ago?

Personal information is normally collected for a purpose and consent is asked for it to be used for a given purpose. Also consent would need to be given to share information outside of the organization. The question is what terms for data sharing did parents agree to when the children were...