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Further on @rvallee's post above and the comment from the Chief Medical Officer about the parliamentary committee inquiry in the post immediately above, there is a thread here with details: Australia: 2022 Parliamentary inquiry into Long Covid and prepared covid infections - submission...

Terms of reference: The House of Representatives Standing Committee on Health, Aged Care and Sport will inquire into and report on: 1. The patient experience in Australia of long COVID and/or repeated COVID infections, particularly diagnosis and treatment; 2. The experience of healthcare...

https://www.aph.gov.au/Parliamentary_Business/Committees/House/Health_Aged_Care_and_Sport/LongandrepeatedCOVID Following a referral on 1 September 2022 from the Minister for Health and Aged Care, the Hon Mark Butler MP, the House Standing Committee on Health, Aged Care and Sport will inquire...

The paper is in Korean, so that hurdle resulted in me not reading the paper, but if women were more likely to be fatigued, perhaps due to bearing a big share of the tasks of housework and childcare on top of paid work, (or more likely to admit to being fatigued in the CFQ), then it wouldn't be...

Some posts thanking Andy for starting threads and asking about how he finds he studies he posts about have been moved here: Management committee announcement - Volunteers needed

@Cohen, maybe things to explore with Professor Tate, who will have access to the electron microscope technology?

There's this from an Australian economic impact study. The study had all sorts of problems, it's probably impossible to answer the question of the impact of a disease without making all sorts of poorly based assumptions. There were only 85 people filling out the survey, and they came from...

Commentary from the Science Media Centre, found by John Mac. https://www.sciencemediacentre.org/...could-potentially-predict-risk-of-long-covid/

Recently the percentage of people able to work came up in a forum thread. A statistic of 75% of people with ME/CFS not being able to work was mentioned. This may have come from the CDC's February 2016 Public Health Grand Rounds bank of slides. Slide 22, part of Elizabeth Unger's presentation...

This might be useful too for those coming to this cold: https://loonylabs.org/2020/03/03/the-f-wave/ I found the diagram useful for getting to grips with which way the motor fibres and afferent fibres go, and what is going on with these waves. Afferent fibres go towards the central nervous...

Exciting stuff @darrellpf. Gene editing using HSV-specific meganucleases delivered by adeno-associated virus vectors that create subtle histological evidence of neuronal injury with potential hepatotoxicity isn't sounding too inviting just yet. But it sounds like progress, and it would be...

Ah, that would be a 'no', then.

An update on the HealthInfo content: There was an issue about the Māori name for ME/CFS that was added to the pages, ruha karioi. We discussed it on the New Zealand news thread. It seemed to have just been made up for the purpose of inclusion in the HealthInfo page. Ruha is tired or...

Following @Ravn's note that the ME/CFS and chronic fatigue HealthPathway content (i.e. the content for doctors) has been updated in Otago to adopt the Canterbury content, I contacted HealthPathways. They reported that: "Southern have localised the Chronic fatigue page dated 9 December 2020 and...

That is such a neat approach @Sid! Earlier I had a half drafted post for this thread with vague ideas on how the question could be answered, but I didn't think of an approach of replicating the gravitational effect of standing while the patients are still lying down. 2007, it's shocking that...

Moved from the News from Germany thread. From the twitter thread above: About vericiguat, which does sound interesting:

The problem isn't with Jo Bruce. She's articulate, and mostly well-informed. I'm sure that her story reflects that of many people with ME/CFS and I found it interesting to hear how she views things. I liked her discussion of the courses she had been sent on to fix lifestyle issues that she...

Potential conflict of interest: It is intriguing, all the same. It would be good to get some confirmation that the technology makes sense, and great to get some independent replication.

Canadian study, unfortunately with a paywall. Link to an article about it https://www.cidrap.umn.edu/news-perspective/2022/09/signs-autoimmune-disease-difficulty-exercising-noted-1-year-after-covid That separation between (severe) Covid-19 survivors and healthy volunteers (at 6 months 80%, at...

and then there's caregivers, and caretakers...