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Cult behaviour. He looks for inexperienced patients to indoctrinate and does it out of sight where nobody can intervene. I wonder what he tells them. Probably just a load of BS about how relaxing and positivity will cure them.

You're assuming that the BPS people dislike LP. Maybe LP is the brainwashing they always wanted to inflict on patients but never felt able to. If they believe that CFS is a sort of delusional illness belief, LP would appear to confirm their views.

@dave30th seems to think that Sharpe is pretending to be a patient on Twitter. Now with the help of David Jameson posting as cfs_research. Maybe @Jonathan Edwards wants to respond to the last tweet.

New article by Cort about the pilot study https://www.healthrising.org/blog/2018/07/14/cortene-chronic-fatigue-syndrome-me-cfs-drug-trial-begins/

:D Speculation about what really drives them is strangely fascinating. It reminded me that this group wanted to make medicine less biological and more psychosocial, but maybe that's just ideology at the service of financial interests. They assumed all this "knowledge" about psychogenic...

Can anyone summarize what this is about?

It's an interesting question by itself and possibly of interest to the SMCI which relies on donations. If it turns out that we donate more than average, we can include that info in advocacy material to strengthen the message that we really need more government funding. If it turns out that we...

How does ME/CFS compare to other diseases in terms of patient donations to research? Do we donate more or less?

If somatization is real and they understand it, why not explain in a sentence how it works and what it is exactly? Is lack of clear explanation because somatization is not a scientific fact but merely a belief that is useful to ensure jobs for academics and therapists? An astrologer would...

It looks fairly good all considered, although PEM needs to be described more in detail on the diagnosis page https://www.cdc.gov/me-cfs/healthcare-providers/diagnosis/approach-to-diagnosis.html

Nothing wrong with relaxation, but can we get some real treatments please?

Autopsy studies. With all tissues accessible, and sufficient money and effort, it should be possible to figure out what is going wrong and where in a sufficiently large number of patients. Combined metabolism and CPET studies should enable development of a biomarker for PEM. Since we all need...

The IOM report is good for this purpose.

If his job depends on dismissing patients, then this is a bit like trying to convince Coca Cola that sugar drinks are unhealthy. It's other people that can be convinced.

Proponents of somatoform disorders are making progress impossible for themselves if they are unwilling to accept the honest patient feedback that the therapy is misguided and useless.

Sounds like they are worried that central sensitization is acquiring a bad reputation because it's applied to psychosomatic conditions.

In short, omnibabble.

I might actually be stuck in a fight-or-flight response due to all the BS of this kind. I think they are confusing disease activity that involves increased sympathetic nervous system tone with a stuck fight-or-flight response. A fight-or-flight response is just one of multiple reasons for...

Postexertional relapse syndrome. PRS.

The same group that opposes IOM criteria and SEID as name also doesn't like the term PEM because malaise is too vague. They prefer postexertional neuroimmune exhaustion. Which to me sounds more like neuroimmune babble than a more specific name.