Michael Sharpe skewered by @JohntheJack on Twitter

Woolie said:
I don't think kd is Sharpe. This person is way too interested in Phil Parker's Lightning process to be Sharpe. Also Sharpe doesn't strike me as a cat lover!
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You're assuming that the BPS people dislike LP. Maybe LP is the brainwashing they always wanted to inflict on patients but never felt able to. If they believe that CFS is a sort of delusional illness belief, LP would appear to confirm their views.
 
Jonathan Edwards said:
It is very easy to interpret the re-analysis. It confirms the uninterpretability of the original paper.
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Quite.

You quote Prof Jonathan Edwards as saying (wrongly) that the PACE was a "mass of uninterpretability" which would imply that all the reanalyses and critiques are also uninterpretable
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No it wouldn't. The original paper, ie the original analysis, was a mass of uninterpretability, not the data itself. It is possible to interpret the data correctly, which is what the reanalyses did.

but you do not acknowledge this inconsistency.
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Because there isn't one. We can leave the acknowledgement of the non-existent to the BPS brigade.
 
You quote Prof Jonathan Edwards as saying (wrongly) that the PACE was a "mass of uninterpretability" which would imply that all the reanalyses and critiques are also uninterpretable
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The Wilshire reanalysis paper repeated Edward's point about the problem of subjective self-report outcomes in a nonblinded trial! Concerns about this clearly don't undermine the reanalysis paper... they're a key part of it!

I don't think it's worth thinking about CFS Research (jameson) and kdcfsme. There are millions of people in the world, and a couple of them will still try to present the Science Media Centre as an authoritative resource on PACE.

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That Sharpe would retweet this is pretty funny though:

"You can see that Bruce Levin didn't actually read the study, as he repeats @davidtuller1's misinformation about the patient newsletter here http://www.virology.ws/2015/10/21/trial-by-error-i/ …. Very sad. Why do even top scientists make such basic rookie mistakes? Incomprehensible and not helpful to us."

I agree with @Sean... that David Jameson's twitter account with 44 followers now seems to be the most prominent defender of PACE is a good illustration of how much trouble they're in.
 
Diluted-biscuit said:
If you can’t prove someone is pretending to be someone else then I think it’s better to not make the accusation. It just plays right into their hands.
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My point was more that kd's points are the exact same as Sharpe's, so they might as well be the same person. I actually assume kd is someone else. I like how Sharpe still tweets at me, as if he hadn't blocked me.
 
Sean said:
Best I know, CFSResearch = David Jameson = 'sciencewatcher' on Wikipedia.
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This twitter account seems to be fairly UK focussed so that might rule out Jameson (who I think is in Canada?), eg:



There are a few clues here and there:




Although a lot of their early tweets about stress reminded me of two posters who both 'spontaneously' turned up on PR at the same time about six months ago but they both claimed to be North American (one from Canada and the other who said he'd seen NYC doctors).

EDIT: that being said, the person who runs this twitter account does have a similar approach to one of those questionable posters on PR in that they both offer to talk/mentor CFS patients via private message. Interesting.
 
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Art Vandelay said:
This twitter account seems to be fairly UK focussed so that might rule out Jameson (who I think is in Canada?), eg:



There are a few clues here and there:




Although a lot of their early tweets about stress reminded me of two posters who both 'spontaneously' turned up on PR at the same time about six months ago but they both claimed to be North American (one from Canada and the other who said he'd seen NYC doctors).
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I'm interested in these Canadian references for a project I'm working on.

I googled "Dr David Jameson wikipedia sciencewatcher" for pages from Canada but he didn't show up and I can't find any other relevant reference to him on Canadian pages.

Do you happen to have any other info you can point me toward that would confirm / deny if David Jameson is from Canada?

Or any info about the twitterer who claimed to be from Canada?

Thanks,
Scott
 
ScottTriGuy said:
I'm interested in these Canadian references for a project I'm working on.
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Jameson's website: http://www.mind-body-health.net/index.shtml
(Note the supposedly positive review from Fiona Godlee of the BMJ on the front page!!)

His 'paper' here lists his location as "Ladysmith, Canada".


This is the poster on PR who claimed to be from Canada:

https://forums.phoenixrising.me/index.php?threads/recovered-from-cfs.57270/
https://forums.phoenixrising.me/index.php?threads/recovery.57186/page-5#post-949590
 
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Art Vandelay said:
EDIT: that being said, the person who runs this twitter account does have a similar approach to one of those questionable posters on PR in that they both offer to talk/mentor CFS patients via private message. Interesting.
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Cult behaviour. He looks for inexperienced patients to indoctrinate and does it out of sight where nobody can intervene. I wonder what he tells them. Probably just a load of BS about how relaxing and positivity will cure them.
 
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strategist said:
Cult behaviour. He looks for inexperienced patients to indoctrinate and does it out of sight where nobody can intervene. I wonder what he tells them. Probably just a load of BS about how relaxing and positivity will cure them.
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He has done this across reddit too, on the subreddit r/cfs where he got annoyed at “trolls”, I.e. patients pointing out that his points of view were toxic, and set up his own subreddit r/cfsme. Fortunately no one really visits it.
 
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Art Vandelay said:
Jameson's website: http://www.mind-body-health.net/index.shtml
(Note the supposedly positive review from Fiona Godlee of the BMJ on the front page!!)
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He made a new video about his CFS theory.



He claims that CFS is caused by changes in brain structure and wiring and that it's possible to reverse these changes with his program, which seems to consist of advice such as avoiding stress and pacing.
 
Art Vandelay said:
the person who runs this twitter account does have a similar approach to one of those questionable posters on PR in that they both offer to talk/mentor CFS patients via private message. Interesting.
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Jameson always comes across as so creepy.

He reminds me of Vogt - they both had periods of ill health where they got caught up in worrying too much about their health, and then when their symptoms improved they tied that to having overcome their fears and they seemed to become desperate to show that their mistakes are perfectly normal, or even that they're impressive for being able to stop worrying so much and recover... if only other people with subjective health problems would adopt a more positive attitude and spend more time reading inspiring recovery anecdotes!

Someone did write up a series of the most ridiculous problems with claims Jameson's made over the years, but I can't find it now. He seems to keep popping up promoting studies with no control groups while presenting himself as a rigorous 'science watcher'. He's someone who'll just fade away imo.

Sly Saint said:
so he is a recovered patient; maybe 'cured' by LP or the OHC as he seems to favour both (also seems to be a fan of Dan Neuffer).
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I think he's just a fan of positive and inspiring anecdotes and quackery.
 
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