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Can you elaborate on this?

I think it's correct to say that this began with Selye, even if he focused on the endocrine side of things. Later on other work was done examining cytokine response to stressors and presumably that's where the stress leads to inflammation narrative comes from. My initial feeling (or prejudice)...

It all began with Hans Selye. One of these days I'm going to read the relevant literature. I think it may be possible that these experiments (like Beecher's work on placebo) may have led to misleading or exaggerated conclusions. Because people keep trying to treat disease by treating stress or...

It is possible to examine the liver of deceased patients. There is a group in the UK that is doing post mortem studies. Charles Shepherd should be able to tell you more.

Also, just because patients feel better on some measure after some feel-good intervention, which could be talk therapy or a stay at a spa, does not mean that the illness is being successfully treated. Referring to such an intervention as treatment for an illness would be misleading.

My favorite quote from his website: "The placebo effect is clearly psychological in nature, and it somehow involves the thought processes of the patient causing the body to heal itself." Ironically, a psychology enthusiast that fails to understand psychology of biased self reporting of health...

Do you think you could get researchers to do a ME/CFS liver biopsy study?

I don't remember if I was gluten free or not. I am now because I cannot afford any further GI inflammation. I have a genetic predisposition for celiac disease. Yes, this happend after I followed de Meirleir's treatment plan, which was a horrible mistake.

This is exactly what happened to me. I drank a lot of kefir because it was so tasty and helped with loose stools, but somehow I became sensitized to it and now all dairy products provoke reactions. The full reaction is delayed and very unpleasant. After avoiding dairy for a while, tollerance...

He made a new video about his CFS theory. He claims that CFS is caused by changes in brain structure and wiring and that it's possible to reverse these changes with his program, which seems to consist of advice such as avoiding stress and pacing.

Cult behaviour. He looks for inexperienced patients to indoctrinate and does it out of sight where nobody can intervene. I wonder what he tells them. Probably just a load of BS about how relaxing and positivity will cure them.

You're assuming that the BPS people dislike LP. Maybe LP is the brainwashing they always wanted to inflict on patients but never felt able to. If they believe that CFS is a sort of delusional illness belief, LP would appear to confirm their views.

@dave30th seems to think that Sharpe is pretending to be a patient on Twitter. Now with the help of David Jameson posting as cfs_research. Maybe @Jonathan Edwards wants to respond to the last tweet.

New article by Cort about the pilot study https://www.healthrising.org/blog/2018/07/14/cortene-chronic-fatigue-syndrome-me-cfs-drug-trial-begins/

:D Speculation about what really drives them is strangely fascinating. It reminded me that this group wanted to make medicine less biological and more psychosocial, but maybe that's just ideology at the service of financial interests. They assumed all this "knowledge" about psychogenic...

Can anyone summarize what this is about?

It's an interesting question by itself and possibly of interest to the SMCI which relies on donations. If it turns out that we donate more than average, we can include that info in advocacy material to strengthen the message that we really need more government funding. If it turns out that we...

How does ME/CFS compare to other diseases in terms of patient donations to research? Do we donate more or less?

If somatization is real and they understand it, why not explain in a sentence how it works and what it is exactly? Is lack of clear explanation because somatization is not a scientific fact but merely a belief that is useful to ensure jobs for academics and therapists? An astrologer would...

It looks fairly good all considered, although PEM needs to be described more in detail on the diagnosis page https://www.cdc.gov/me-cfs/healthcare-providers/diagnosis/approach-to-diagnosis.html