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The presence of nonsense terms suggests they are automatically generated with an imperfect algorithm.

Brilliant. She is so valuable. With MPs on our side, it should be easier to pressure the Lancet and organizations in the UK that are still ignoring the problem.

Judging from the description, this is the Mark Davis T cell receptor stuff.

It is not tinnitus. It is some form of abnormal brain activity as far as I can tell.

What is this symptom called, where I wake up in the night, and feel vibrations in my head, with a high pitched undulating sound that rapidly increases its pitch and then stops with a pop? Otherwise it felt a bit like waking up from an unpleasant dream. There is mild anxiety, but no terror or...

A metabolic trap, potentially curable with a simple and brief therapy? Sounds too good to be true. They really are hyping their work too much.

It wasn't that long ago that PACE was a great RCT, a thing of beauty, conclusive evidence.

It does sound like the MRC and CMRC have changed their attitude but until this translates into good research people will be skeptical.

Sounds like the dysautonomia people could learn a thing from the ME/CFS community ;).

Interestingly one tweet also said that POTS patients tend to be on gluten free diets, and that this might reflect poor carbohydrate tollerance more than a gluten sensitivity. POTS patients also have abnormal glucose tollerance according to another tweet. I keep saying that there is also...

Reading this one gets the impression that ME is primarily a dysautonomia. One the tweets said that adrenergic antibodies are found in almost all POTS patients.

The ICO vs QMUL ruling debunked the crazy militant story. Various articles in science journals debunked the PACE claims and vindicated patient concerns. The journalists seem to now understand that the Science Media Center is an unreliable source of information on the topic. The IOM report may...

Presumably, he will do the same with ME.

These psychosomatic theorists give me a backwards religious nutter vibe. The similarity is in the belief in mysterious unseen forces, which only they can understand, and in their tendency to attribute illness to the moral failure of the sufferer, and their lack of interest in objective science...

Boom and bust to me means markedly higher performance than normal, followed my markedly lower performance than normal. That doesn't describe what happens. The illness with boom and bust pattern is bipolar disorder. Push and crash to me means struggle followed by collapse, which is a better...

The Japanese brain inflammation study is important to replicate. Could lead to a diagnostic test and low grade brain inflammation could explain a lot. Mauren Hanson's recent work on PEM using metabolomics, autonomic testing and CPET (still ongoing, but some preliminary results were published)...

FOI requests to see what kind of proposals they are getting and rejecting could be informative.

If society doesn't take action, it must be because there is so much doubt and uncertainty, or doesn't believe ME is a serious problem, or is hardly even aware of ME. I feel like part of the problem is that the BPSers were very effective at influencing public opinion. Their narrative was...

Michael van Elzakker said that one problem in the field is lack of serious research into root causes. We have many studies documenting the effects of the illness (usually small and often poorly replicated).

The birth of the "unbecoming" meme? I welcome it, for the vexatious activist meme has become stale.