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  1. Ash

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    I am afraid I don’t rate this. What would like to see being emphasised as an expectation of Drs right now with our current state of knowledge and before any money is spent or decisions made about avenues of investigation, is as follows; I would want a Dr able to make the straight forward...
  2. Ash

    Functional Neurological Disorder–Old Problem New Perspective 2023 Perjoc et al

    Yeah I get it @shaun. You’re jealous because you don’t have the authority to dictate what words mean. I guess it’s just the social hierarchy in action. What can you do? :rolleyes: For you and I at any one point in time words will mean what they are explained to mean through history and by...
  3. Ash

    One possible reason the CBT/GET proponents misunderstood ME/CFS so badly

    Yes @Mithriel this is it. It wasn’t a mistake. ME has had a rough ride it’s true some illnesses have been treated better overall. But also I think it is treated very much as many others are and have been before it. Although some diseases have had a clearer pathway in the search for science...
  4. Ash

    Functional Neurological Disorder–Old Problem New Perspective 2023 Perjoc et al

    It would take some research for me to identify the exact nature and lineage of this particular flavour of bull****ery. I am reminded of the present and unfolding appropriation within the NHS by BPS proponents of arthritis, MS and cancer patients. Along with asthma patients, poor things only...
  5. Ash

    WatchME and other HR/HRV monitoring apps

    Thanks @SNT Gatchaman! I would like an excuse to sell another piece of my soul to the Apple empire, in exchange for ease of use and enjoyment. I can imagine I might be incentivised to keep using this one on account of the other features as you mentioned which might help me keep up with...
  6. Ash

    UK: Workshop - CBTReach - CBT for Persistent Physical Symptoms, Chalder - 9 May 2023

    Yes. Certainly no one is permitted to check whether what you the researcher says and you do matches up with what we all might commonly expect as a picture of good intentions or not. If anyone looks they might find your intentions seem to align rather well with what looks like bad intentions...
  7. Ash

    Understanding the Behavioral and Medical Impact of Long COVID, 2023, Jason & Lapp

    Thanks @Tom Kindlon I read the content pages, looks to cover many areas and includes many MDs from different specialties. This makes me so hopeful. I don’t know what this book specifically recommends at this stage of research. I am nervous some claims to knowledge may be made at bit early...
  8. Ash

    WatchME and other HR/HRV monitoring apps

    I don’t know if this is the right thread to use so if not please redirect me. I don’t have any continuous bio measuring devices, but I am planning to get one. I want to get the most accurate measurements that I can. I want to measure cardio oxygen sleep phases. I am severely affected by ME...
  9. Ash

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    “But leftists are supposed to be critical of establishment politics and politicians. We are supposed to challenge the narratives sold to us by the Joe Bidens and Donald Trumps, the Fox Newses and CNNs of the world. We are supposed to stand with marginalized groups- disabled people, the elderly...
  10. Ash

    Long Covid in the media and social media 2023

    Thanks for pointing this out. I’ve just listened to whole segment. With BBC radio 4 editorial perspective and women’s hour having a strong bias in favour of establishment interests I had expected a painful listen. As was indeed the case. They had invited Dr Binita Kane to give the perspective...
  11. Ash

    Rehabilitation Interventions for Post-Acute COVID-19 Syndrome: A Systematic Review, 2022, Fugazzaro et al

    When I partook of “Fatigue Clinic” support I often had significant insensitive to tell clinicians that their advise was helpful. They were often quite hostile when I did not improve. I did need them to write letters for my benefits. So it wasn’t really a choice. In a trial lots of people will...
  12. Ash

    “Unstoppable” documentary

    With back of the envelope maths I would say Cancer(s) win this undesirable trophy hands down. The Cancer fraudster leaves ALL other diseases and conditions in the dust….. These are players High risk High stakes Massive win’s and the occasional expose. Then there’s the “Depression” crew jogging...
  13. Ash

    Why use Forget Me Not as a symbol for ME?

    I think previous association with other campaigns is important to consider before adopting a an image symbol or phrase.
  14. Ash

    Why use Forget Me Not as a symbol for ME?

    Forget me knots are beautiful and cute name. But I think where they are associated with death in certain areas culturally or spoken about as if they are by ME charities as @MittEremltage has pointed out that requires thought. That requires consideration. I associate them most strongly with a...
  15. Ash

    BPS attempts at psychologizing Long Covid

    Having a “Mental disorder” provides 100% protection against physiological consequences of viral infection don’t ya know :rolleyes:
  16. Ash

    A Picture of_ME: media images of ME

    “UNLIKE HUNDREDS OF SERIOUS DISEASES THAT ARE NOT EXPECTED TO LOOK SICK.” @Samuel Yeah I quite agree.
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