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  1. Ash

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think they will be embarrassed that he hasn’t been bothering to NHS ify the lingo. He’s failed to muddy the waters he’s let off the foghorn instead of the dog whistle. But having said that this exactly what many drs and researchers say and think about our predicament. It’s just their language...
  2. Ash

    UK Royal College of Psychiatrists

    Yes. A very fine piece.
  3. Ash

    The idea that ME subtypes explain treatments only working for some—thoughts?

    People who share a diagnosis of a certain disease (well established pathology) based on the most objective findings via tests and scans, don’t necessarily respond the same to medications that they might be given, even those with a proven track record of some level of effectiveness for improving...
  4. Ash

    Success or otherwise of NHS Long Covid clinics

    I haven’t been to one because I heard that they were in most areas of the country terrible. I think there might be two or three that were good, if I remember it right, but only because they refer to actual medical specialties, which most don’t since it seems they were set up to divert patients...
  5. Ash

    Antihistamines

    Thanks for putting this information out there everyone, I’m gonna delve next time I’m capable!
  6. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Perfect thanks so much @Trish for expressing this all so clearly.
  7. Ash

    New Long Covid non-profit 501(c)(3) org registered: Long COVID Foundation (LCF)

    It’s more annoying and less upsetting to be mischaracterised by a blanket statement from a newbie, than it is to receive this from the usual professional BPS/medical directions. But geese, is this one fully ignorant? Or just not one for history? After all…Viral persistence is a very old idea...
  8. Ash

    Responsible ME/CFS journalism - how to report on treatments?

    When I was able to attend Buddhist teaching events, or sangha with monk in attendance, we were taught that mindfulness was a powerful tool and not to be messed with. That the purpose of practicing daily was so that we would form muscle and mind memory in the good times so that eventually we...
  9. Ash

    Preprint Frataxin Deficiency Drives Shift from Mitochondrial Metabolism to Glucose Catabolism, Triggering Inflammatory Phenotype in Microglia,2023,Sciarretta+

    Ahh thanks, I was imagining you could buy acetate tablets of some kind. Pretty sure I am not brave enough to try the vinegar baking soda drink. What symptoms does it help with, or is supposed to help with in theory?
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