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mentioned by @Binkie4 on another thread " reMEmber Saturday 12 May 2pm – ME Awareness Conference. Dr Amolak Bansal clinical lead of the Surrey CFS/ME Service, will be talking about the mitochondrial research of Professor Julia Newton at Newcastle University. Dr Charles Shepherd Medical...

“Our aim is that the WHO and its Member States consult with people affected by M.E., in a transparent and meaningful way, to lead a global public health response to this illness,” says our Chief Executive, Sonya Chowdhury. “This would include supporting increased research and ensuring...

bit like a bunch of human rights lawyers starting a band and calling it 'Guantanamo' (?)

It might actually be appropriate in 'their' case: "England's first hospital for the mentally ill. With its somewhat scandalous history it came to represent all institutions of its kind in the public imagination." "Those who became patients were usually the poor and marginalised" "The hospital...

Maybe next year someone could film them performing then ask them if they wouldn't mind watching the video and answering a few questions?

or recorded/copied and posted all over social media

#MILLIONS MISSING BIRMINGHAM! Friday MAY 11th 2018 St Philip's Cathedral Square Birmingham 12 noon - 3pm Come and join us! *Messages for shoes (we have enough shoes!) may be sent to us now. Please send your message to ssbmesg@outlook.com NOTE: Birmingham are doing it a day early!

#MillionsMissing Visibility Action: Liverpool, UK Starts on Saturday, 12 May 2018 at 11:30 AM Ends on Saturday, 12 May 2018 at 2:00 PM Liverpool City Centre / Church Street near Primark . St George’s Hall or The steps outside John Lewis . Top of Church St Liverpool, United Kingdom...

We hope you can join us – in person, on social media, or by sending shoes we can lay out on your behalf (or just a label, we can provide the shoes) to: #MillionsMissing, 29 Caernarvon Road, Keynsham, BS31 2NY. We would also like to share your ME story. Please email your experience of living...

Is there anything that those of us who cannot attend any of the organised events could do online? I imagine all those on twitter and FB will be posting stuff (eg #MillionsMissing poster) but I think like last year where in UK there was a 'Bin PACE' component that some kind of similar 'protest'...

I was a bit confused at first as when I went into 'reader view' on this link, the title of the article was " Women Suffer Worse Migraines Than Men. Now Scientists Think They Know Why " but then the article that followed was about Minke Whales! Very interesting but not what I was expecting! (I...

I've found a few more references; Bedlam appear to perform quite regularly at the BABCP conferences: http://babcpconference.com/spring_2018/index_spring_2018.htm Prof David Veale · @drdavidveale. Professor David Veale is a Consultant Psychiatrist in CBT at The Maudsley & Institute of...

At first I thought this might be Simon Wesselys stage name, but no "Zeeteah Silveta Massiah is a Barbadian-born British singer particularly associated with reggae, jazz and house music. In a wide-ranging career she has recorded and/or toured with artists including Robbie Williams, Tom Jones...

I thought this must be a joke but................. "27 Mar 2018 - BEDLAM are a 14-piece band with several members from the BABCP (including David Veale, Trudie Chalder and Helen Macdonald). They will be joined by a guest star Zeeteah Messiah singing on a couple of numbers. They will be...

Although the project is supervised by Dr Daniels, the Lead Researcher for this project is Samantha Lloyd. She co-authored this: Corrigendum to “Telephone-based guided self-help for adolescents with chronic fatigue syndrome: A non-randomised cohort study” [Behav Res Ther 50 (5) (2012) 304–312]...

Not a million miles away plus : Esther Crawley "She set up and leads the Bath specialist CFS/ME service for children based at the Royal United Hospital in Bath."

"You will receive a £10 voucher and contribution towards travel as a thank you for taking part in the study." you might even get a free shopping bag(?) eta: if they threw in a months grocery shopping it might be a bigger incentive

Ok so the shopping bag study may be low cost but still a typical example of the rubbish they are 'researching'; what about £1m on FITNET? Not to mention MAGENTA etc etc........my point is this is happening on their doorstep.

Would be good if when highlighting lack of investment in research they raise the issue of where the little money available is going......... ie in Bristol on quack therapies (LP) and 'Shopping bag' studies. Meanwhile AfME (also based in Bristol) are doing their thing in Geneva.......