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"I wrote Toward Tomorrow to bring attention to this crisis" This month Vancouver's Opera Mariposa, a company "run by young artists, for young artists", presents Toward Tomorrow, a something-for-everyone event with a great cause. Opera Mariposa co-founder Jacqueline Ko wrote Toward Tomorrow as a...

S.Res.508 - A resolution supporting the goals of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome International Awareness Day. https://www.congress.gov/bill/115th-congress/senate-resolution/508/text?format=txt

The Perrin Technique has made its way to the US: "Dr. Perrin has observed repeated physical patterns among sufferers that can’t be pure coincidence, including spinal irregularities, sore throat, and tender lymph nodes. The Perrin Technique for the diagnosis and treatment of CFS/ME was developed...

The Jackson Laboratory for Genomic Medicine Farmington CT Patch 21 hrs · Event is June 14 @5:30 pm; Researcher to Give TED-style Talk on Latest Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Breakthroughs JAX Hosts Free Community Event to Share CFS Research Event is June 14 @5:30 pm...

maybe someone could tweet Simon Wesselys 'scientific' analogy of PACE: https://www.nationalelfservice.net/other-health-conditions/chronic-fatigue-syndrome/the-pace-trial-for-chronic-fatigue-syndrome-choppy-seas-but-a-prosperous-voyage/

Email from Linda Tannenbaum: " We arrived Thursday, June 7, on our last stop of our End ME/CFS Worldwide Tour in Zanè, a town in the province of Vicenza, Veneto, Italy. We were welcomed with a lovely dinner we shared with Giada Da Ros, President of the CFS Italian Association, Paolo Maccallini ...

Here is one list :http://www.pkdiet.com/pdf/LowOxalateDiet.pdf but there are many on the internet and they often contradict each other. I can't find the one I used (I changed pcs). As mentioned in indigophotons post above, I also increased my calcium intake although apparently oxalates also...

https://www.s4me.info/threads/analysis-of-minister%E2%80%99s-response-in-westminster-hall-pace-debate.2674/

I can testify to that and I assure you it's not fun; even before you get to the stone stage the crystals break off in the kidney (bit like a furred up kettle) and attempt to make their way out of the body. I had regular bouts of renal colic lasting up to 48 hours. No pain killers (even morphine)...

I hope that removal of CBT/GET from the guidelines before 2020 is one of them, or at the very least a warning about exercise and stopping use of the CFS 'directive' version of CBT (as Emma described very well in the Scottish Parliament.....manipulative I think was how she put it). Did Carol...

I did the same!(via email) and asked her to circulate as she saw fit.

Letter from Countess Mar to Professor Simon Wessely 4th December 2012

(genuine question, ie not intended to be 'hostile') so what is your 'red line'?

spotted these posted at the other place: can anyone tell us what this is all about? eta: I got them directly from IiMEs FB page

@Emsho :emoji_medal::emoji_military_medal::emoji_trophy:

anyone asked Sharpe about the 10 year follow up feasibility study that was given the go ahead? https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/pace-10-year-follow-up-feasibility-study/

I just went to the press release link and this popped up: "Get Your FREE Copy, Dominate Google Today! Subscribe and Get a FREE copy of "How to Dominate Google SEO Using Press Releases" 2017 Edition." ah well, never mind I'm sure there is someone with ME/CFS in Canada who has had the same...

Am I the only one concerned with #MEAction (who previously were very adamant in distinguishing themselves from Action for ME) now collaborating with AfME?

#Justice4ME

This is what I'm talking about; after seeing @Emsho s testimony I felt compelled to watch VftS again before I started this thread. It is particularly relevant given the recent news about Merryn Crofts. Two of the patients (Lyn Gilderdale and Sophia Mirza) are no longer with us. MPs who have...