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At what point and why did they decide to change the outcome recovery figure from 85 (?) to 60.

wow, never heard of Howard Bloom before but amazing story; only caught some of his 'cocktail', oxytocin, magnesium, amytriptaline...? eta: from wiki "Oxytocin is also thought to modulate inflammation by decreasing certain cytokines." eta2: "I take 30 pills. It’s a lot of pills, but remember, I...

Although they are inviting patients, I would think that this is just the sort of thing where it would be worth having a patient representative from one of the ME charities attend(?) But I guess they have bigger fish to fry.

maybe there should be a separate thread on FND(?)

Indeed, particularly concerning their head of Childrens Services being former head of AYME. I hope for the children and parents sakes that things will work out for the better.

I initially thought it was saying that Clare Gerada was implicated in the manslaughter charge.......badly worded.

this was the Trudie Chalder one from the same time: the PACE press conference: and an interview with Chalder on how to 'deal' with CFS patients: not recommended if you're feeling queasy; and if you are not then you will be afterwards....

No idea if this has been posted somewhere. It is a letter submitted in 2015 from the Independent Commission of Freedom of Information call for Evidence (don't know what the outcome of this commission was?). It's on page 137 of 212...

Not new (2016, published 2017)but thought it worth adding here: Practical Management of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis in Childhood Amberly Brigden, Maria Loades, Anna Abbott, Joanne Kendall-Boyd, Esther Crawley Department of Psychology...

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Given the flaws of the PACE trial (as he expressed in his interview with AfME), does he think it is right that the existing 'treatments' of CBT/GET should remain in NICE guidelines until 2020?

Excellent show (I prefer the shorter length). Jane Colby next week......looking forward to that one!

" Finland must not use UK and NHS as an example. The situation in UK for people with ME is atrocious with largescale prejudice based on poor research (e.g. PACE trial) and misinformation about the disease being propagated by corrupted media sources influenced by a cabal of psychiatrists who have...

So much for leaving the CMRC. compare to the statement made by IiME: "We view this as a pyramid business – unregulated, unaccountable and unscientific. Claims that it cures people with ME we find as risible hype." "The LP business has no place in serious research and cannot be researched...

Just came across this request (have not looked at the contents): Mentions of postviral fatigue syndrome (benign myalgic encephalomyelitis), deaths registered in England and Wales, 2001 to 2016 Release date: 18 May 2018 Reference number: 008461 Summary of request This table presents the...

Sadly it looks as though she (the author) has been persuaded to try the Lightning process: " bs1992: Look into the Lightning Process- you wont look back once you get well again! Many others around NZ have success stories :) lisso: Thanks, my mum has very kindly offered to pay and I am booked in...

OMF are already using it:

retweeted by IAME some responses:

Given the recent response of ' the information is not available' to a recent question in Parliament, I doubt it.

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