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" Posted on 17 May 2018 Researchers at Keele University are looking for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME) to discuss a study which aims to give a better understanding of the support needs of people suffering with the condition. A meeting will be...

" Date: May 17, 2018Author: ME news Australia 0 Comments by Sasha Nimmo ‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve...

I saw this post some time ago: Are People ME/CFS Now Being Diagnosed With FND Instead? rest of post here (from 2015) https://healthunlocked.com/fndhope/posts/131853256/are-people-me-cfs-now-being-diagnosed-with-fnd-instead

It should be available: from the IAPT Manual: " In line with the implementation of The Five Year Forward View for Mental Health, evidence-based treatment will be extended to people with comorbid LTCs or MUS (See Section 11.2). The newly developed IAPT-LTC services will focus on people who have...

@JenB have you thought of doing something with the 'voices from the shadows' team? http://voicesfromtheshadowsfilm.co.uk/

MS is actually quoting Richard Feynman now! delusional or what.

Michael Sharpe has retweeted this....... baffled (see this thread) https://www.s4me.info/threads/pace-and-wessely-school-research-is-it-cargo-cult-science.3187/

Article on the above: How much does idiopathic hypersomnia overlap with ME/CFS full article here: http://www.emoryhealthsciblog.com/how-much-does-idiopathic-hypersomnia-overlap-with-me-cfs/#more-15001

aha eta: just thought AHA were Norwegian(?)

Cabal? What Cabal?......ha, talk about nailing your colours to the mast of good old ship PACE

program is available starts at around 01.09.00 https://www.bbc.co.uk/programmes/b0b25dbl The guy being interviewed is Edward Bullmore, Psychiatrist. He's written a book called 'The Inflamed Mind' review: https://us.macmillan.com/books/9781250318145 Have just looked him up on Wikipedia where...

indeed......... BTW, the Bristol ME Support Group are on FB https://www.facebook.com/bmesg

Coming up today (not sure at what time exactly) discussion on depression not being a 'mental illness' but is caused by inflammation. https://www.bbc.co.uk/programmes/b006wr3p eta: after 1.00

eta: for anyone on twitter the petition to remove CBT/GET from NICE guidelines is still ongoing https://www.change.org/p/nice-stop-harming-me-cfs-patients-take-cbt-get-out-of-me-cfs-guidelines-now

recent press release from TYMEs trust: 9 May at 12:42

10 minutes on Google (or better still me-pedia) would have sufficed; I was sending the BBC (named recipients) the same info as other media channels until my emails started being rejected. But in a strange way it is good to see the public confirmation that Simon Wessely is still very much behind...

No surprises there then. Wonder if someone could put together a counter reply to send to the BBC? @Jonathan Edwards @dave30th

great show; one question: Charles mentioned that the MEA are funding Julia Newton (Newcastle) research (not sure which project). Is the the same research as AfME are funding (Julia Newton is their medical adviser) ...