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Don't these reporters do any research of their own? It isn't rocket science that Michael Sharpe would say GET is a safe treatment that works for some people when he is one of the leading authors of the PACE trial.:banghead: eta: Social media and email Our email address is newsbeat@bbc.co.uk...

Although AfME say they are 'supporting' #MillionsMissing, apart from their 'contribution' in Geneva they have hardly mentioned it on Twitter or Facebook and have not mentioned at all the #MillionsMissing protest in Bristol. Anyone on twitter or FB care to rectify the omission...

in other words the SMC, and their chums who conducted the 'research' and whose careers were built on these findings says:........bla bla

The big question is (certainly here in the UK) will any major media outlet mention it? Does anyone know if anything is being done by any group to try and get media coverage? The fact that the one in London is outside the BBC broadcasting house is hopeful............we'll see if they cover it...

there is this forum for Finnish patients: http://cfs.gehennom.org/foorumi/ "Besides Finnish, posts in English and Swedish are allowed on the forum, as long as they are relevant to the readers (e.g. posts from immigrants living in Finland or about CFS/ME events taking place in nearby countries)."...

Of course the biggest news in Scandinavia is ABBA are getting back together..........:emoji_guitar::emoji_musical_keyboard::emoji_musical_score:

Definition of fink - an unpleasant or contemptible person. Aptly named.

indeed, often to be found in dentists/doctors waiting rooms (although usually several years out of date); wonder if Wessely is a subscriber...

google translate doesn't work for me any more (no idea why); you can access all the articles here Camilla had ME and brain tumor, chose to end his life in a clinic Had fought chronic illness for several years ✓ Partner Anders: ”Looked gloomy” The minister: ”I'm touched” Give the new...

5804 sudden spurt over the last couple of days

From AfME FB: "11-year-old Action for M.E. supporter Libby, who has M.E., and her mum Emma have shared their story with The Metro today for M.E. Awareness Month. You can read more about Libby's story at...

@dave30th do you know what the situation is/should be. IE presumably ethics approval was given partly because she had the backing of a patient organisation (AYME)(?)

@Liv aka Mrs Sowester have you been taking your magic beans again........from your new avatar you seem to be getting younger and younger:D

" 1st May 18 Libby is one of the youngest people in the UK to develop the chronic fatigure condition. A mum has spoken out about her 11-year-old daughter’s heartbreaking loneliness, after chronic fatigue condition ME transformed her from a sport-loving livewire into a virtual recluse. One of...

The obvious example is the Lightning Process......but I've been coming across a number of others who are citing Crawleys research to promote their 'product'...eg " The researchers from the University of Bristol (UK) conducted the biggest study about chronic fatigue syndrome (CFS). CFS is also...

I was watching an Australia drama called 'A place to call home' set in the 1950s where they used ECT to cure a man from being gay......horrific: " Shunned, abused and tortured: David Berry portrays what many gay men endured in 1950s Australia Shannon Molloy ACTOR David Berry would be so...

as AYME have been absorbed into AfME is FITNET now under their 'supervision' like PACE was?

https://www.s4me.info/threads/work-and-pensions-select-comittee-uk-findings-re-failures-of-pip-and-esa-assessments.2344/#post-44545