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Futile thought but I'd like to know how people considering signing up for this mess, I mean study, can be warned off -- that it would only be used to create nonsense through disingenuous interpretations.

This is just my opinion but I think you are over confident that because we are the inhabiters of the current most recent time that somehow we are too sophisticated to make silly mistakes of nomenclature. I doubt this is really the case especially for poorly understood disease. Although this...

It didn't look that bad to me. It looks like it's written by someone who checked that their info is up to date but have had no real connection with this illness from personal experience. No doubt his knowledge is probably on the shallow side with maybe not any idea of the issues around...

Perhaps written by this person? https://lindagask.com/ ETA: It seems our Anil Van Der Zee is familiar with her as I see a comment on a blog article there. Would love to see a rebuttal argument.

No, the linked article was just a pointer. The evidence is in 'Thirty years of distain' Mary Dimmock I believe is a forum member (medfeb?) along with her son (IIRC) mfairma

I think this has been well documented by people like Mary Dimmock and through freedom of information requests where it has been discussed between the relevant parties including Stephen Strauss. But this is old news and I have forgotten most of the details. http://me-pedia.org/wiki/Mary_Dimmock

For me the problem is that rationality (and in my opinion this is how you are looking at the issue of naming) doesn't enter into it. The history of this illness is strewn with words that have been given their own unique meaning. And when the illness was relabelled as cfs it was with the...

Posting with the hope that someone here might find this article illuminating/interesting and possibly discussion worthy. http://eiko-fried.com/all-mental-disorders-are-brain-disorders-not/ Also, the link within the text to this...

My opinion is that Wessely et al calling harassment to some of the comments I've read on the forums here and on PR is just a another political tool to suppress speech. The idea that they would feel threatened is plain silly. And yes some people who read such things will want to believe it. I...

You've actually highlighted an area of real need. It's unfortunate there is not more out there. If you do find anything useful or find other resources it would be good to hear about it.

I don't see it that way. @petrichor every day in all kinds of situations we make judgments based on limited data. It's an important skill to teach our children how to function in life by helping them to take what data there is available and to use the mental tools available to decide whether...

Hi @Kafka I've never read this so don't know how much it will help but there's this: http://www.stonebird.co.uk/Care Sheets.pdf and there might be something here: http://www.25megroup.org/info_Carers.html ETA: also found this but it requires payment to access...

That's really good news. Thanks Webdog for pursuing this.

I am coming late to this thread and have not read all posts (skimmed) I will try and stay on point although the conversation may have drifted elsewhere. I think teaching nutrition ought to happen in a simple way in grade school and then as a module in both biology and chemistry (with different...

I expect that they are. But while I have no direct knowledge I expect that they may have other sources of funding too and that it is that funding that might be problematic. I do have one (sadly already vague) bit of knowledge of other funding -- it was announced here somewhere 50,000 pounds...

Do you actually consider that a likely possibility? I guess different styles come down to assessing probabilities. I don't consider it likely at all. I think judges (and certainly any open minded person)can put things into context and come up with what is reasonable or not.

It's beginning to look to me very much like a charity that wants to be relevant to the patient population and do right by them but is also very much afraid to rock the boat in the UK. Again, it could be a who funds them issue. Certainly whatever it (might) be they won't feel at liberty to...

I believe in 2015 (and I expect since) SC pay was between 70-80 thousand pounds. I get this figure from the end of year 2015 trustee report and accounts under (pg 28) Staff Costs -- subheading number of employees whose emoluments amount for the purpose of taxation to over 60 thousand pounds -...

Or two hashtags that are short and make the point: #ImWithTuller #biosci4ME

here https://undark.org/article/five-questions-lydia-kang/ is a link to an article in undark about the book in the thread title. I thought it might be of interest to someone here and maybe there might be someone here who might want to read the book.