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  1. Sasha

    Questions for Prof Simon Carding of the Quadram Institute, June 2019

    Some time ago, I think I read that the Quadram research was designed to produce a blood test to measure whether 'leaky gut' was a genuine thing, or to diagnose is in patients. If I'm not remembering that wrongly, I'd like to know what progress has been made.
  2. Sasha

    Abnormal changes during Tilt Table Test in ME/CFS patients are NOT related to deconditioning

    Thanks! I was wondering if it was a Systrom thing, but seem to think it was something else.
  3. Sasha

    Abnormal changes during Tilt Table Test in ME/CFS patients are NOT related to deconditioning

    Is this the only paper indicating that OI in ME isn't due to deconditioning that has come out within the past year? I seem to remember something else but might be mistaken. @Trish - tagging you because I think you keep up with all this! :)
  4. Sasha

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks - that's very interesting. I don't think I've had all of that done.
  5. Sasha

    IiMER International Conference Week London 2019

    Really?! That's a big step forward, and I'm really pleased to hear that IiME have taken it. Looking forward to seeing the videos! I seem to remember that it's usually July by the time the DVDs arrive so hopefully not having to produce a physical object and mail it will speed things up a bit.
  6. Sasha

    IiMER International Conference Week London 2019

    Thanks Andy - do you mean they'll be posting a link to buy the DVD (rather than posting the video footage)? Their usual thing is to allow discounted 'early bird' pre-orders but I haven't seen any of that. They don't usually wait for the DVDs to become available.
  7. Sasha

    IiMER International Conference Week London 2019

    Does anyone know if there's a DVD of the conference to order? I had a look at the IiME website but couldn't find anything.
  8. Sasha

    Jen Brea: My ME is in remission

    Actually, this is reminding that I did go into a major remission but it wasn't instantaneous with a specific treatment.
  9. Sasha

    Jen Brea: My ME is in remission

    Actually, I've never experienced that in over 30 years of being ill - certainly not instantaneously, if that's what the traction test is doing. I think this is an interesting question generally, because sudden and enormous improvement seems to be very rare, from my own experience and my...
  10. Sasha

    Jen Brea: My ME is in remission

    Thanks for explaining - I'd misunderstood your concern. That sounds like a way forward.
  11. Sasha

    Jen Brea: My ME is in remission

    I'm mostly absent from the forum now but just swinging by to congratulate you @JenB! This is fantastic news. I'm so happy for you. :balloons: I had a long remission myself many years ago and was surprised that I felt quite down emotionally - because it's only when the shit is over that you know...
  12. Sasha

    May 2019 - Awareness Week including Millions Missing

    This is a really superb and impressive video from Sheffield.
  13. Sasha

    Incomplete Healing as a Cause of Aging: The Role of Mitochondria and the Cell Danger Response (2019) Naviaux

    I look considerably younger than my age but I've always assumed that that was because of lack of UV exposure, because I have been mostly housebound for decades. In terms of stuff going wrong with bits of me, I seem to be right on target, age-wise!
  14. Sasha

    Prof Chris Ponting's stirring speech about reseach at Glasgow Millions Mission event

    Your instructions were better, though! :)
  15. Sasha

    May 2019 - Awareness Week including Millions Missing

    Very powerful demo - great idea, @JaimeS!
  16. Sasha

    Prof Chris Ponting's stirring speech about reseach at Glasgow Millions Mission event

    Sometimes I need to click on the speaker icon to unmute the sound (some things auto-mute it).
  17. Sasha

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    @dave30th - this front end of BU's reply is revealing: In your emails of 4 and 29 April you ask several questions, most of which do not relate to recorded information held by the University of Bristol, but rather seek to elicit opinions or to engage in debate. The University is not obliged to...
  18. Sasha

    May 2019 - Awareness Week including Millions Missing

    Was there any video from the San Francisco event?
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