Search results

Just wanted to belatedly thank everyone involved in this - not just on the day, but in all the years of hard work that led up to it! Patients shouldn't be in the position of having to fight off bad research being applied to them and being defended by a powerful establishment. Our position is...

Full debate on YouTube:

I want to watch the start live, because this is a historic moment for us... and I'm taping the whole thing. :)

@Action for M.E. - I'm not well enough currently to read much and so haven't read the original document and have been able only to scan Trish's complaint and David's article. But if David is describing this correctly and the document has already gone out to DWP then it would not enough for AfME...

Is this another thing that needs a new thread in order to gain attention?

A great six months, @dave30th - much appreciated!

Am I right in thinking we still don't really know what time the debate is, other that it's some time (possibly hours?) after 9:30 am?

Would you like to add this to the calendar, @Michiel Tack?

I just had a look at that and I see that the list of attendees is online. I don't know if that's everybody, but not everyone may be happy to be listed.

Thanks, Robert! :) @Trish...

When I filled in the form and sent my email, I got an autoreply from my MP asking me to provide my full name and address if I hadn't already - so I sent a second email. @Andy, I don't know if you want to mention this in your post above? There's space where you could provide your full address...

Does this new call to action need a thread of its own? :) I'm not a fan of thread-proliferation generally but a call to action can easily get buried in a thread that has announced some news and that people don't feel they need to keep reading. This is an important call to action - maybe one of...

The SMC is a registered charity (surprisingly) so if it's in contravention of any charity legislation, that's a point of weakness.

Thanks, @Andy. That was interesting. The message contains errors/typos, and is confusingly laid out, with a picture of text at the top that stops partway down, before you get into the actual text of the petition. But that clearly didn't stop it being successful. It's quite a simple message - it...

I searched for the actual petition but couldn't find it. I was curious to see what it said, because ME petitions on the 10 Downing Street site have reached much lower number of signatories. Perhaps we could learn something from the approach.

I agree - I'd have liked an option saying that GPs should know that PACE and its ilk are a scandal and that the NICE guidelines can't be trusted.

How do we get them?

My understanding is that in the social sciences the principal author is listed first and in medicine, they're listed last, so when you get a psychological medicine paper, it's very confusing! But this paper was published in Archives of Disease in Childhood, so I'd expect the principal author to...

Some good tweets from Guthridge have been posted here. Is he a researcher?

This is the research bit from a fundraising message from Nancy Klimas's INIM (broken up for ease of reading, with a link to the fundraising at the bottom): Research Gulf War Illness (GWI) Dr. Nancy Klimas has carried the research vision in the Institute for Neuro-Immune Medicine and has...