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Beat me to it. And still it drags on!

To me this illustrates a key facet of pacing - there is no one-size-fits-all. In fact, given everyone's energy availability (including rate and pattern at which it can be drawn on) are very bespoke, I'm very wary of anything involving specifics. Needs to be sane budgeting of each individual's...

Yep.

I think your article is wonderful @Naomi10. If medical professionals reading it are not moved, and don't gain real insights, then they ought to consider a different profession. You get things across extremely well.

Any suggestion of a causal relationship based on this must surely be extremely tenuous?

Beat me to it. If life threatening conditions can be passed down the line, and medical science is now better at saving those lives, then it seems highly possible it is at least a factor. I imagine asthma may be of higher prevalence today, simply because in times past many sufferers would have...

Yes, in this context it is about evidence.

Could this be another indication that ME is autoimmune related, for some at least. Something comes along that gives the immune system a kick, and briefly the ME symptoms change. Could it be that briefly the immune system has a real bug to fight, rather than its host? Just to clarify I'm neither...

Yes, it's much more about energy budgeting. For each PwME there is only so much energy available over any given period of time. As for financial budgeting, it may be all too easy to 'over spend' energy prematurely, not realising it will be needed later to avoid going overdrawn. The major...

I think non-ME-aware people need help to understand the basics, and something along the following lines might be educational: ME damages the body's ability to exercise Over-exertion makes it even worse We would love to exercise more A cure for ME would mean we can

I think it's a sort of objectivity-blindness. They operate in a world where everything is subjective, and seem to end up with a very woolly interpretation of 'recovery', which in truth may be much more about better coping skills. I have no problem with helping people improve their coping skills...

The best way to enhance recovery definitions is to include within those definitions ... recovery from the illness.

Because they thought they could get away with it? Because they were so convinced they know best, so decide to play god and effectively do their own ethics 'approval'? And as I write that, the sad irony (and criminality?) of it is evident. The very people believing their is no need for ethics...

So being the non-scientist non-medic that I am, is this deformation an important part of how red blood cells do what they need to do? Or is it an unavoidable side effect which the body has to cope with?

Yes I agree it likely refers to recording speed. So 4000 fps will be very fast, presumably so they can look at what is happening greatly slowed down.

Fully agree. I should probably have said additional recruitment bias.

Important to try hard and avoid inadvertent recruitment bias, which may be a trap dedicated recruitment efforts might stray into.

Themselves I suspect. Maybe self-delusional, but some might say that would be nothing new?

My - isn't that insightful.

Maybe hoping no-one will notice?