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Wow. Which journalist said that?

Oh God @rvallee you do make me laugh sometimes :laugh: I had such a picture of somebody doing & saying jazz hands, i know you've said it before, but it just tickled me tonight, thanks for the light relief:D That diagram of the peptic ulcer codswallop is priceless, where did it come from?

Indeed :) but i just felt it was unhelpful to snark at people who are at least trying to do something useful for us, & seem to be on our side. :D I just do get so frustrated at the gross lack of understanding of the practical realities of living with ME. There is plenty of info out there, if...

Indeed. They also need to recognise that resting is a different thing than 'relaxing'. It asks if you'd find it helpful to record time you spend relaxing but not asleep "eg watching tv". This makes me think it's written by healthy people with little to no understanding of the realities of life...

Amen! @Dx Revision Watch Suzy you and Mary are absolute heroes! We all owe you a great deal. Goodness knows what horrors would have occurred without your vigilance & hard work. I know the battle isn't over yet but yeesh I'm very grateful for what you've achieved so far!

any comments @Jonathan Edwards ? Does this make sense

3 cheers for Trevor Butterworth :emoji_clap:

Precisely. Sounds like a kind of baiting, trolling etc. My take on that is not to engage, not to give them the attention they so obviously crave. It's like when perpetrators bait their victims in court trying to get a reaction out of them that they can use to illustrate the victim is 'unstable'...

Hi @saranbonser good to see you here, & thanks for sharing. I'm sorry to hear of your experiences. Am glad we have you on the GDG thank you so much for doing it i know it wont be easy.

@dangermouse this is the kind of pacing i use. it's 'Symptom Contingent' rather than 'Time Contingent'. http://www.wames.org.uk/pacingweb.pdf Ironically, a psychotherapist recommended it to me. It was back in 2003 before all this pollution of the term had really started. She recommended it to...

https://inews.co.uk/news/real-life/disabled-man-left-humiliated-wet-himself-in-airport-after-begged-for-help/?fbclid=IwAR1VvnsRoqE4K1Cjmffc-72Kg1mYZe8ir8JLJGQFiCCKF6p5en0VqHzzEeE Absolutely appalling treatment of this poor guy while travelling. Disgraceful. And what he's trying to do to give...

Ok @Jonathan Edwards thank you

thanks, no problem perhaps you could tell me what criteria i might apply when choosing one - ie how does one tell if it's "decent" ?

I'd like to do that. Can you recommend one? One that's as basic as possible. It'll likely not manage it due to cognitive challenges, but i'd like to understand a bit more of this so i'd like to try.

Thanks @Jonathan Edwards, I thought as much but as a layman it's hard to sort the wheat from the chaff! or from the 'complete bullshit' :D

More on 'Psyhoneuroimmunology' can be found on pages 167 - 172 of this book https://cdchester.co.uk/wp-content/uploads/2018/05/SUSANA1.pdf The Cambridge Handbook of Psychology Health & Medicine. the book has a chapter on CFS & is discussed in this thread...

thanks @MEMarge

thanks @NelliePledge

I havent the heart to watch it, I had such a hideously awful day today i just cant take anymore, but my family watch & if it mentions ME i need to be prepared because they swallow anything thats "on the news".... does it actually mention ME in the report? or just FM/MUS

:) me too @dave30th Always happy to unofficially proof read anything when I'm able. Since I've been ill, the slightest errors really shout out at me, i think it's because it's a bit of a struggle & my brain doesn't make up for the errors by 'filling in' in the way it did while i was healthy, so...