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If they are using completely inappropriate questionnaires or the equivalent approach to interviewing the parents, it's no wonder they diagnose such a high rate of somatisation.

Posts with the US announcement of withdrawal from the WHO have been copied to: International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

Apologies for setting off a misleading discussion. The suggestion is Science Unravelled, not ME/CFS unravelled. I still think it's a problem though.

Only dizziness for me when badly crashed. Usually accompanied by nausea with or without vomiting. My usual OI is different.

The only one I can opt for is ME/CFS In Depth, which I like. Problem with ME/CFS Science - not distinctive enough, won't stand out from the crowd, and could be taken to imply more than you can be expected to supply. Sounds too comprehensive Problem with ME/CFS Unravelled - The word has...

Flu, Covid, Norovirus and RSV (respiratory syncitial virus) So called quaddemic currently filling UK hospitals to overflowing.

And there was I assuming from the title that this would be about compassion towards sick people. But no, it's about the clinicians needing compassion towards themselves for having to deal with us.

People with ME/CFS have been plagued by so called ethical use of completely inappropriate questionnaires for decades. It seems all it takes to 'validate' a questionnaire is to dream up some questions, get some people to fill them in, run the data through some stats packages and publish them. No...

I don't really get why the NHS needs e learning modules. Why not tell clinicians dealing with pwME to read the NICE guidelines? I guess I should read the whole thing before I condemn it. There are some good bits. At least it does make it clear we shouldn't be told to exercise and it's not a...

Just glancing through some of the treatment section Symptom management Sleep hygiene and CBT for sleep - no evidence and can be harmful for pwME Cognitive rehab - no evidence OI is confused with POTS. I'm no expert, but surely a blanket recommendation of increased salt for OI could be harmful...

I think it's unlikely a biochemist would normally be expected to study and comment on the details of the part of a joint study that is so far outside their field. Though this can be a learning experience about which sort of team to work with in future, and what questions to ask and seek advice...

Excellent idea.

Why is your sick child not behaving like an idealised perfect healthy child? Er, well, they're sick, innit. This stuff is so harmful to sick children.

Thanks Peter.

Thanks, @Dolphin. Does anyone know whether anything was published?

It's concerning that there's an LP trial happening and more planned.

Hi @MelbME. Thank you for your continuing engagement here and your willingness to listen to criticism and suggestions. All too rare among researchers, we find. Have I got this right? As a non clinician, the only way you could access a cohort of child patients for your omics study was through a...

I haven't read all the posts on this thread, I'm just responding to the abstract and media article. I guess people will respond differently to this. I can only speak for myself. My response is a resounding NO. Thus is not for me. The idea of being asked to write, draw and colour in on a...

I think the studies do show that non pacing is ineffective. If it were effective even a badly run study would have had better results than, for example PACE. And the surveys and published analysis of them show it's harmful.

I think the trials of exercise therapy are helpful in the sense that they only find small transient subjective improvements and no objective improvement, including no increase in return to work. The large surveys of patients experiences of treatments all show GET as the worst and most harmful...